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Transplant: BK Virus

Transplants | Last Active: Apr 16 10:39pm | Replies (120)

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@lmcarmichael

Hi All, It's now mid April 2024 and I'm starting to feel better on the BK Bladder/Urine front. In all honesty I can't remember how long it's been since I first reported symptoms to my GP, then transplant and infectious disease (I'm sure many of you know that time can start to be a blur with various symptoms). Anyways, I ended up going completely off the mycophenolate and am now just on 3 anti-rejection meds (tacrolimus, sirolimus and prednisone). I think that's all my body can tolerate even with the rejection situation. I thought I'd share for the other's out there that may look at this thread someday with BK and know that it will go away with reducing anti-rejection med's but it's a very very slow process. They started with me some time last summer. It's been about 9 months now. I chalk it up to transplant life.

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Replies to "Hi All, It's now mid April 2024 and I'm starting to feel better on the BK..."

@lmcarmichael, Good Morning! Hearing your positive news is a great way to start the day.

I know that fellow members will want to know of your update.
I am tagging @hello1234 @kim1656, @l0lag0lag0b3, and heart transplant recipients - @scottij @estrada53 @danab

Hi lmcarmichael, Great news that the bladder is under control. Its great to know that our teams have plenty of ways to handle issues. I myself was taken off of mycophenolate due to a virus only I thought dogs get. Who knew there is a human version. Its called Parvo B19 and your right I went thru a long process to get it under control. But again, my team hade it under control. Thanks for the update, Approaching your first year. I hope all is getting to a good place overall.