← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

Discussion

Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 days ago | Replies (736)
Comment receiving replies
@mspope111

Hi Karen,
I am on month 2 of Camzyos. I went from 257 LVOT down to 57. Still on 3 blood pressure meds and still tired with naps. Hopefully this will improves. Did it improve for you right away or over time? Thanks.

Jump to this post

Replies to "Hi Karen, I am on month 2 of Camzyos. I went from 257 LVOT down to..."
nanakpm | @nanakpm | Apr 15 7:56am

Hi. I’ve been on Camzyos for almost a year. So glad to hear from Karen317. I felt better soon after starting Camzyos - more energy, less angina, fewer naps. But the LVOT gradient didn’t come down. My dr wanted me to stop Camzyos and have surgery. I persisted and asked to try higher dose instead. After 6 months the LVOT started to come down. I started on highest dose in November and by January the LVOT dropped from 119 to 58. By April this year it’s down to 7. I think some of us take longer to respond. If you’re feeling ok, stay with it! Great to hear about other people’s response. Thanks to all of you.

VIEW AND REPLY