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Started Hydroxyurea: How long to see decrease in counts?
Blood Cancers & Disorders | Last Active: Apr 16 1:30pm | Replies (29)Comment receiving replies
@mamsgirl1998, I know you considered your options, including getting input from members about choosing treatment in this discussion you started:
- Essential Thrombocythemia: Making treatment decisions https://connect.mayoclinic.org/discussion/essential-thrombocythemia-4/
Like you, @janannaideal2 also recently started treatment with hydroxyurea. I moved your post to join this discussion:
- Started Hydroxyurea: How long to see decrease in counts? https://connect.mayoclinic.org/discussion/hydroxyurea-2/
@mamsgirl1998, two months in, how are you doing?
Replies to "@mamsgirl1998, I know you considered your options, including getting input from members about choosing treatment in..."
Good afternoon, @mam121555, my 1st dose of HU (500mg) was mid January, this year. I have had ET for about 5 years, or better. I was very leery, as I said because of the side effects. I reluctantly 'gave in' to my Oncologist recommendation and start HU in Mid-January. My Platelets have been up and down, showing little to no change. (1,200 - 1,600)
Starting this week, my regime will be 500mg daily and 1000mg on week-ends. I pray this will work for me. I have also noticed my hair thinning and increased fatigue, so I am not looking forward to the HU increase. I pray that all will be well with you, myself and others that have health challenges in our lives.
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I am doing well. I exercise 4 days a week and working on my diet gluten free and low carbs. I am going to start seeing a dietitian. I feel I made the right decision for me.