Talk about flecainide

Posted by katiekateny @katiekateny, Nov 8, 2023

I saw a quick comment somewhere here that flecainide is really bad.

So..I did a bit of checking….every reference I found said that the risk of liver and or kidney damage requires the patient to be closely monitored. Wow…I was put on this and told nothing about monitoring…further I was told that the risk for low. That’s not what I am reading.

Also, I found this at drugs.com (frankly I think they wouldn’t publish without the facts to support it):

Warning
Oral route (Tablet)

Excessive mortality or nonfatal cardiac arrest rate was seen in patients with asymptomatic non-life-threatening ventricular arrhythmias and with myocardial infarction for more than six days but less than two years previously who received flecainide, compared with patients assigned to a carefully matched placebo in the Cardiac Arrhythmia Suppression Trial (CAST). Consider the risks of Class IC agents (including flecainide) and the lack of evidence of improved survival, which is generally unacceptable in a patient without life-threatening ventricular arrhythmias, even if the patient is experiencing unpleasant, but not life-threatening, symptoms or signs. Flecainide is not recommended for use in patients with chronic atrial fibrillation. Case reports of ventricular proarrhythmic effects in patients treated with flecainide for atrial fibrillation/flutter have included increased premature ventricular contractions, ventricular tachycardia, ventricular fibrillation, and death.

If you followed my story here, you know that I rarely have an episode and never lasts more than a few minutes. Been this way for 8 years. Hardly what I would call a life threatening condition. (Especially now I am on eliquis).

I suppose I could go back to my primary…but, it is unacceptable to enlist help to confront the EP? I worry that I might get fired by the doc if he feels I am just trouble. So, I cannot get into the EP for 2 more weeks…(remember closely monitoring?). I am inclined to just taper off this and then quit.

What would you do with this knowledge?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

I do not do well with flecanide. Too high a dose makes me feel drunk and slur my speech. Also could not take in evening as it would lower my heart rate into the 30s. Since my ablation have not needed.

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I had the sane terrible symptoms with flecainide people are describing including waking up in horrible pain in my back. I tried 4 different times to see if I could deal with it and no luck. I have refused to take it.

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I take 50mg twice a day.
No problems. But, it is a powerful drug.
If you have limited AFib ( just a few minutes every once in a while), I think I would ask about something else.

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