Hello @caracello22,
Colleen linked me to this conversation as I also have Follicular Lymphoma (low-grade) diagnosed from one neck lymph node excision. My incredible oncology team at UCSD has been "actively surveilling" me since my diagnosis 3 months ago. I am asymptomatic BUT I have lesions in many bones (neck/spine/both hips and pelvis), which they first thought was part of FL once they ruled out Multiple Myeloma. Three bone biopsies and bone marrow biopsy all came back showing no lymphoma or metastatic disease. Chemo for 6 months was recommended before these last results came in so now we tabled chemo until my next PET scan in a few weeks. It's been a day-by-day/week-by-week roller-coaster ride. My oncologist said chemo would have zero impact on benign lesions so we will compare my first scan to the next one to look for any other changes.

From what I have been told and researched on my own, Follicular Lymphoma is a chronic disease, not a terminal one. It seems our bodies respond to it differently as evidenced by the forum here. I hope your team can give you more assurance about treatment vs. no treatment or no treatment at this time. By the way, before scans picked up the bone lesions, I was told a similar protocol to yours but more frequent: labs every month and a PET scan every 3 months for the first year.

I am nearly 70, and don't have young children or grandchildren (yet) so I cannot imagine what it's like to live with this worry with your young child. Although as @jessica0 said, they could be the very best distraction to keep your spirits up! For me, proactive research (and that isn't just Dr. Google!), special moments daily with my life partner (who has MGUS), time with friends, visits with my adult children, sunshine and exercise keep me in good spirits most of the time. I still have days like yesterday where I can't seem to get out of my head, which is also understandable.

I wish you all the best in your own journey and keep laughing with your child!