Can anyone assist me with any help in regards to my skin condition

Posted by michellesorbello13 @michellesorbello13, Apr 10 8:11am

I got psoriasis in September last year 2023 after strep throat a couple of weeks prior. It covered my whole body including my hair but not my face. My skin has only just now started to improve a bit after my steroid cream was changed to diprosone. I have many other symptoms including extreme fatigue, joint pain and sometimes swelling, body aches and muscle weakness in my arms mostly, and numbness in my hands that wakes me up every night and I wake up every morning with completely numb hands. About a month ago I developed a butterfly shaped rash on my face that made my skin red roar and extremely dry flakey skin. It felt like it was burning. My gp said that it was a side effect of using Enstillar foam spray for my psoriasis on my body so I was changed to diprosone. I feel I'm not being listened to and the doctors are missing something. I can feel something wrong within me. I also get kidney pain often. Can anyone help me with any possible answers ? Please. I am a 44 year old female. I have had psoriasis and psoriatic arthritis in 2007. I also had the ulcer form of psoriasis in my mouth, and the fungal nail psoriasis in 2007. One skin flare up around 2018 and nothing again until September last year.

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@dlydailyhope

@michellesorbello13
You poor thing. I feel for you and your suffering. From what you describe and from my personal experience, it seems you have a combination of something rheumatological and neurological and an autoimmune response. You may also benefit from seeing a neurologist for EMG and nerve conduction testing plus bloodwork tied to central/peripheral nervous system. Something is triggering your numbness, weakness, facial rash (Trigeminal nerves causing burning rash on face…I have had that and extremely painful). What I have learned is that certain viruses acquired in life (mono EBV, herpes HSV, COVID, etc.) lay dormant in nerve ganglia and get reactivated (triggered by stress/illness/autoimmune) and when they do, it can wreak havoc in the body. It may also be good to do a full blood panel for your thyroid (TSH, T3, T4, TPO for autoantibodies) to see if something is off. Sometimes you may fall in the “normal” range but it may not be optimal levels for you. You would want an endocrinologist to help you if your thyroid is not functioning properly. Prayers for you to get the help you need and deserve! Really advocate for yourself to improve the quality of your life and prevent any worsening symptoms.

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Thankyou so much for your advice

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@michellesorbello13

Thankyou. That is my plan now to research as much as I can and learn as much as possible so I can take it all to my doctors and see if all the issues are related somehow because the more I read it seems that way. Any and all advice is greatly appreciated.

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When you do research there are several versions of screening tests for psoriatic arthritis. You answer the questions and evolve a point total that suggests you have the diagnosis.
My results were positive and yet my first rheumatologist
gaslighted me as my psoriasis was so mild and controlled
with minimal involvement of my scalp and nails on steroids.
My present university rheumatologist did a very thorough
consult with ultrasound to make the right diagnosis.
There is no specific bloodwork for PsA but it helps exclude
other conditions.
The antibody medications for psoriatic arthritis improve your skin as well. The type of psoriasis flare caused by strep infections
is termed guttate psoriasis and could be mistaken for dermatitis. Hope your new rheumatologist gets you on a disease modifying drug. I would consider finding a dermatologist more interested in your case.
They will likely reassess your lupus antibodies but the facial
rash may be dermatitis related to the body eruption.
Psoriatic arthritis affects our bodies as a form of inflammation that needs ongoing management.
You have a good support community here and we are interested in your progress.

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Michelle, you obviously have more going on than is being recognized. Some of your additional signs and symptoms could fit with psoriatic arthritis ( fatigue and joint pain, swelling). Some may be from additional autoimmune diseases and people with AI disease often have more than one. The biopsy of the rash on legs should have included immunoflourescent studies to pick up autoimmune disorders like lupus. Lupus causes butterfly rash on face but is more on nose and upper cheeks and spares the fold between nose and cheeks. The hand numbness could be carpal tunnel syndrome if it spares your pinkies. That occurs frequently in AI disorders that cause arthritis because swelling occurs in the tunnel and compresses the nerve. I think a rheumatologist is essential to test you for other AI disorders and for systemic treatment. Topical steroids are totally insufficient for what you are dealing with. I would highly recommend a different dermatologist who will consult the rheumatologist and come up with a valid diagnosis and stepped up treatment plan. I’m sorry you are feeling so bad and being dismissed by your Dr. You deserve better, more appropriate care! Good luck and keep us posted please.

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@giosov

Hi, i have almost the same syntoms iam 51 years old, i live in Colombia. first episode in August 2023 i´ve visited 5 dermatologists and 2 rheumatologists 3 hematologists, 1 internist doctor; many blood exams and everything is ok (says Doctors) biopsia says ¨granuloma anular" and the other one "dermatitis" i continue looking for a treatment or an medical answer.
That appear and after dissapear and repeat 2 o 3 months later worst. im very worried

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@giosov @michellesorbello13 I followed up on the comment from @giosov whose doctor said it was granuloma annulare. It does look like what you both have. Here is a discussion by Mayo Clinic that talks about causes and treatments.
https://www.mayoclinic.org/diseases-conditions/granuloma-annulare/symptoms-causes/syc-20351319
Some scientists say that it an autoimmune disorder because the immune system is involved.
If you haven’t already, I would suggest that both of you add your postings and photos to the Skin Health discussion group. https://connect.mayoclinic.org/group/skin-conditions/
You may also wish to return to the dermatologist and/or the rheumatologist, with this article in hand, and ask for treatment.
Do you think this is a possibility? Will you also see what the members in the skin health group can tell you?

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You might consider keeping a food log and trying an elimination or FODMAP diet. Stress is a huge and under-researched issue with autoimmune problems. I'm 69 and have had acne rosacea (butterfly rash) on and off for many years; it is controlled with 0.75% metronidazole gel. I had rashes on my legs and arms for 30 years; I was just given hydrocortisone cream and told "its just dry skin" , aka the dermatologist mantra. Turns out, it was eczema triggered by gluten. I didn't know I was gluten intolerant until H1N1 and extreme stress morphed it into celiac when I was 55. The rashes all went away within a few months of gluten free (GF), as well as GERD, GI problems, and a few other. I have celiac, collagenous colitis, polyneuropathy, MGUS, had Reiter's, hypothyroidism, and other minor autoimmune stuff. I am GF, and minimal processed and some other foods. Food-grade petroleum jelly is fine because it is chemically inert. Collecting autoimmune and other diseases is not fun, and they can isolate you socially, so it is important to escape them mentally and physically as much as you can. I didn't have psoriasis, but here is a link to diet and symptoms: https://www.hopkinsmedicine.org/health/conditions-and-diseases/psoriasis-diet-foods-to-eat-and-avoid-if-you-have-psoriasis

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@michellesorbello13

Thankyou for your response. I finally just got an appointment with my local hospital and they took a skin biopsy of my leg as my lower legs have been insanely itchy and that came back as atopic dermatitis. But the rash on my legs is different to what it originally was and to the rest of my body. I have an appointment with the hospital rheumatologist in 2 weeks. I also get alot of fluid retention in my body. The dermatologist at the hospital I feel was really dismissive and said just keep using the diprosone and see you in 4 months! I also have depression and anxiety.

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I’m so very sorry I wish you could find other doctors. I’m terrible sorry I thought my autoimmune issues were bad the fatigue is awful and very hard for others to understand. The skin and dryness is awful. But you are young and I’m so sorry you’re struggling with all of this. I will keep you in my thoughts and hope you find a more supportive medical team at a major hospital that will help you!!! I’m so sorry. I have Sjogrens, Raynard’s, Small Fiber z neuropathy and Scleroderma, terrible fatigue and brain fog. I’m feeling depressed about it also but have a team of wonderful doctors at Mayo. I’m so sorry keep searching for a Doctor that understands. So sorry!

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@michellesorbello13

Thankyou for your response. I finally just got an appointment with my local hospital and they took a skin biopsy of my leg as my lower legs have been insanely itchy and that came back as atopic dermatitis. But the rash on my legs is different to what it originally was and to the rest of my body. I have an appointment with the hospital rheumatologist in 2 weeks. I also get alot of fluid retention in my body. The dermatologist at the hospital I feel was really dismissive and said just keep using the diprosone and see you in 4 months! I also have depression and anxiety.

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yo me broté después de tomar amoxicilina con acido clavunaico para la fuerte molestia de garganta que se me presentó antes y la dra que me tomó la biopsia me dijo que ese brote solo en piernas y brazos solamente era muy típica de intoxicación por medicamento. pero también se me hinchan las articulaciones
me hicieron examenes de SIDA (negativo) hepatitis (negativo) reumatismo y artritis (negativo) ecografias de abdomen y demas organos (todo bien) los leucocitos si elevados. ANAS y ENAS negativos
siempre he sido muy saludable, nunca me enfermaba, tengo un niño de 4 años y otro hijo de 19 todo muy bien con ellos y los embarazos normales. hasta agosto 2023 que me enfermé con esa erupción leve y en enero 2024 como en las fotos. terrible

no comas mucho tomate eso me hinchó el codo esta semana. igual sigo buscando médicos que me ayuden y cualquier cosa te voy contando. si quieres me escribes

espero que mejores pronto

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@giosov

yo me broté después de tomar amoxicilina con acido clavunaico para la fuerte molestia de garganta que se me presentó antes y la dra que me tomó la biopsia me dijo que ese brote solo en piernas y brazos solamente era muy típica de intoxicación por medicamento. pero también se me hinchan las articulaciones
me hicieron examenes de SIDA (negativo) hepatitis (negativo) reumatismo y artritis (negativo) ecografias de abdomen y demas organos (todo bien) los leucocitos si elevados. ANAS y ENAS negativos
siempre he sido muy saludable, nunca me enfermaba, tengo un niño de 4 años y otro hijo de 19 todo muy bien con ellos y los embarazos normales. hasta agosto 2023 que me enfermé con esa erupción leve y en enero 2024 como en las fotos. terrible

no comas mucho tomate eso me hinchó el codo esta semana. igual sigo buscando médicos que me ayuden y cualquier cosa te voy contando. si quieres me escribes

espero que mejores pronto

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@giosov A moderator will remove your email address. This is a public site and we want to keep all members safe. You can always communicate through Private Messaging.

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@michellesorbello13

Thankyou. That is my plan now to research as much as I can and learn as much as possible so I can take it all to my doctors and see if all the issues are related somehow because the more I read it seems that way. Any and all advice is greatly appreciated.

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For self education go to dermnetnz.org which has one of the best skin conditon sites on the internet.

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@gardeningjunkie

For self education go to dermnetnz.org which has one of the best skin conditon sites on the internet.

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Ok great I will. Thankyou very much for your advice

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