I feel your frustration and pain. 17 years of CIC, with the same GI specialist (who admitted that he has no idea how the ANS, motility and CIC are related). I am 65, I literally have tried every single thing, scripts, powders, Magnesium, all types. I buy Miralax by the case. I have had x-rays every few months for years, my fecal load is always moderate to severe. Now I just found out I have a redundant splenic flexure, these are 99.9% congenital, so my GI has known about it since the beginning and never told me. When an enema can't work, because the poop blocks the holes in it, that should have been a gigantic red flag to me. Out of sheer desperation, fear, I keep my body in a constant state of loose stools and also buy Depends by the case, to wear if I leave my house. Getting old is 💩💩💩💩

I don't know what you ate on your grain-free diet, but have you tried eating a lot of cooked produce (including root vegetables and leafy greens) and very little processed foods? It is difficult to eat the amount of produce I am thinking of without home food prep. Have you tried cutting out meat and chicken?

And I am sure you have looked at your meds and supps to see if there is anything there that is constipating.

You likely have tried a low FODMAP diet/IBS angle.

And there are lifestyle issues, like anxiety and stress that can interfere with motility.

If you haven't tried a kiwi at night, give it a try. It makes the muscles work.

Hi.. I,ve had gi problems my entire life. A GI specialist needs to diagnose seriously. Sometimes it’s hard to tell it there is blood in the stool as well. I’ve had the chronic constipation since I was around 11 and can’t even start on all the different medications. There are milder forms of gastroparesis that can cause those type issues though… what finally made any difference for me is a little known trick an Italian dr friend of mine told me about that’s normally used for pancreatitis but can be used as a laxative. It’s a liquid prescription and you can start out with very small amounts and adjust easily and I found that it’s the only thing that will help and not give me diarrhea.. I know in higher doses it can cause that but as I said it’s so adjustable. See if doctor heard of that trick.

You mention your pediatrician. Do you have a Gastrointestinal doctor? This is the specialist that deals with the kind of issue you are having.

Do you have any other health issues. They could be related. Parkinsons is one of them

In my experience, it’s ongoing daily care.
With the long and tortuous colon, ( redundant colon )
Unless you have a chunk cut out of the colon to shorten it, which I understand can cause a myriad of problems 😳
( i believe in my case it’s hereditary to have this xtra long colon …)
Then you have to help the passage of food through in a speedier way , to get past all the extra twists and turns we have..
I have found a way after 65 years, cosmocol sachet everyday, plus a spoonful of inulin and flaxseeds..
Gluten free diet…
You simply have to manage it , it’s a pain but I’m happy to have found my way….and made it into a habit..
Cosmocol is probably the British version of miralax I keep reading about 🤔
Good luck everyone.😘

Anna17XOX, I forgot to answer your question on food intolerances. Yes, I have myriad food intolerances 🙂

I can’t reduce salt, because the last 3 sodium blood tests were a little low.

I think my constipation is trying to return. I have returned to Miralax, but I’m not mushy! More natural now and complete. That’s a good sign, right?

Good luck. I have tried laxatives and they are not consistent and have side effects like bloating, etc. And all say for occasional use. They disrupt the system if take continuously, I believe.

Hope you don't have a redundant colon but you may check it out? Here are some ideas about constipation but we all have our own biological individuality. Last Dec the doc had me do non sedated colonoscopy. He could get through the colon as I watched on TV. I had had a baby years ago so figured I could stand it - no big deal. Most people in world don't get put out. Very interesting and it helped allow the scope to get through because I relaxed. Look up Osmotic gradients and Migrating motor complex and consider your electrolyte balance. OptiMag and K2+ Potassium are great supps and be sure to include prunes, squash, sweet potatoes, rhubarb etc in your diet. I like to soak ground 2T chia and 2 T flax seeds in prune juice overnight, then take half in the morning and half at night. Throw sugar out, processed and refined foods and drink lot of water starting with a quart of hot water in the morning. Coffee and Smooth Move are my back ups. I don't like coffee but it usually works. Good luck, @farmersmith

Anna17xox, I am guessing that you are 17, by your name and reference to pediatrician. Farmer smith and others have given you great advice. I am 65, with formal diagnosis of CIC 17 yrs ago. I am older, with many medical issues that can lead/cause chronic constipation. I could write a book about my own 💩💩💩 experiences. You mentioned maybe blood, you really need to rule this out, now, and for certain. I don't know if you being young can rely on the box test, Cologuard.
Your pediatrician is right about taking this to the next level and see a GI. However, most, specialists are likely not willing to really get all the answers for you. So, if you go to a GI, ask lots of people for advice on choosing a GI. I was with my GI for 18 years, he was terrific at first, diagnosing me with lifelong celiac disease, since I was and still am asymptomatic, he was very proud of himself for the diagnosis that shocked everyone. But 17 years of trying to find the cause of my CIC, my body has responded to nothing for any long period of time. He literally dumped me after 2 x-rays showed I was probably forming a partial small bowel blockage, he disagreed then he had me have a CT scan, that proved him right, no blockage forming(I had stopped eating almost all solids and drank high grade meal replacement shakes and even more water than the large amounts I drink always)... but showed I had a redundant splenic flexure(this is 99.9% congenital and often causes no problems, but it is causing me problems and pain)). 3 months later I was in the ER with a partial small bowel blockage. We all define 💩 differently. I would stop the Metamucil/fiber and use the miralax or drop back to a stool softener, depending on what your CIC is like. I am retired, so I have the luxury of putting my body into full on diarrhea for days to see just what comes out. This may not be an option for you. Also, you can have almost normal poop or diarrhea flow over fecal impactions. Ask your pediatrician for an abdominal x-ray, standing and laying down. This will show if, where, and how much, you have fecal matter retention. I came up with this idea when my GI just kept hitting dead ends with my treatment. I have them every few months, for 10 yrs..only 2x in 10 yrs I had normal amount.(except for during a colonoscopy there is always some fecal matter in the colon). So, every other time I had moderate to severe fecal load, in @ least 2 of the 3 parts of the colon, usually all 3 parts. In my humble opinion, you are WAY too young for this CIC. Two last words: If you are straining, something is wrong; if you are having forceful/explosive gas and poop, something is wrong. I truly hope you can find a great dr. You deserve to feel good and live life without this.