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← Return to meld score is a 12 ?
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I've been under the pre-transplant Hepatoogist, who happens to be the director of their liver transplant program
I have for 4 yrs
I've been under his care
Full shabang every 12 weeks. He admitted he was guessing about why it stopped at 8
They have no contingencies for the Low MELD thT many hospitals are studying like crazy
.y SYMPTOMS labs scans showed every aspect of Decompensation.
As far as 2 d opinions, I've had 5
All agree the disease is marching towards death but number is stuck
Most die before the have a
MELD that isnt showing how sick you really are. Everyone in my family are docs or advanced practices nurse. My father was a big wig for many years here, so they try to cross every T. ut they seem umaware of this phenomenon
Trust me. I advocated just as hard for myself as I have for all patients in 34 yrs. My HE is so profound i can't speak intelligently, typos...Im sorry I sound ignorant. I was ACTUALLY highly intelligent
Seems a long time ago
Lol
Replies to "I've been under the pre-transplant Hepatoogist, who happens to be the director of their liver transplant..."
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Hi @nusscass, it certainly sounds like you are between a rock and a hard place as they say. I can't imagine not being able to get listed. I understand that you've tried to get listed at multiple transplant centers, been advocating on your own behalf and had support from family members who are also clinicians.
Is a living donor transplant an option for you? I found this blog that talks about low MELD scores:
- Living Donor Liver Transplant: Is it Appropriate for Patients in Critical Need? https://connect.mayoclinic.org/blog/transplant/newsfeed-post/living-donor-liver-transplant-is-it-appropriate-for-patients-in-critical-need/
EXCERPT
"While the MELD score is used to identify patients who are sick and need a transplant sooner, they sometimes don’t accurately reflect the patient’s need for a liver transplant. Examples include patients needing frequent tap or removal of ascites fluid or patients with frequent hospital admissions for confusion. These complications often do not raise the MELD score but still depict a greater need for transplant. ..."