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meld score is a 12 ?

Transplants | Last Active: Apr 12 1:55pm | Replies (20)

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@rosemarya

@nusscass, I want to reply to your curiousity about MELD Score being stable at 8. As for me, I was diagnosed with a non-curable progressive liver disease, Primary Sclerosing Cholangitis (PSC) nearly 10 years before my MELD reached acceptance to the Liver Transplant Clinic at regional University Medical Center. During those years, my symptoms gradually increased while I was monitored by my local gastroenterologist (GI). My MELD score increased rapidly over the following months along with progressing symptoms. My age was similar tou yours, between 50-60.
When I read your message, I could not see whether you are under the care of a GI or a liver specialist. I can even feel your frustration and your hopelessness.
@nusscass, Out of my curiosity to you- Are you seeing your doctor regularly? Has he/she offered any medical interventions for your 'disabling' symptoms - or whether they are related to your liver?
I would encourage you to get 2nd opinion or even transfer your mdical care elsewhere. Have you considered a 2nd opinion?

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Replies to "@nusscass, I want to reply to your curiousity about MELD Score being stable at 8. As..."

I've been under the pre-transplant Hepatoogist, who happens to be the director of their liver transplant program
I have for 4 yrs
I've been under his care
Full shabang every 12 weeks. He admitted he was guessing about why it stopped at 8
They have no contingencies for the Low MELD thT many hospitals are studying like crazy
.y SYMPTOMS labs scans showed every aspect of Decompensation.
As far as 2 d opinions, I've had 5
All agree the disease is marching towards death but number is stuck
Most die before the have a
MELD that isnt showing how sick you really are. Everyone in my family are docs or advanced practices nurse. My father was a big wig for many years here, so they try to cross every T. ut they seem umaware of this phenomenon
Trust me. I advocated just as hard for myself as I have for all patients in 34 yrs. My HE is so profound i can't speak intelligently, typos...Im sorry I sound ignorant. I was ACTUALLY highly intelligent
Seems a long time ago
Lol