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Looking for others with Pulmonary embolisms
Lung Health | Last Active: Jun 8 3:22pm | Replies (82)Comment receiving replies
Welcome, @dawn46. I moved your post about your recent pulmonary embolism to this active discussion:
- Looking for others with Pulmonary embolisms
https://connect.mayoclinic.org/discussion/looking-for-other-with-pulmonary-embolisms/
I did this so you can easily connect with members like @lcwilkie @bateman @sadiecat @ladyaceintx1 @kjcarlson @sallygirl and many others.
Dawn, in addition to the unnerving news that you experienced a pulmonary embolism, it sounds like the diagnosis isn't a clear one. Are you on any medications until your appointment in May?
Replies to "Welcome, @dawn46. I moved your post about your recent pulmonary embolism to this active discussion: -..."
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Colleen,
I missed this and want to thank you for moving my post! How kind of you. I wasn't able to do much of anything for 11 months. It turned out that I have a small fibroelastoma (benign tumor) next to my pulmonary valve in my pulmonary artery. It's very uncommon and after fighting for 11 months for a 2nd opinion found that the new Dr. had another patient similar to me and didn't recommend open heart surgery because it is a real big deal surgery for a small tumor. If I could live with not knowing exactly what was in my artery he was fine monitoring me. He also thought due to modern advancements in scans, it found a tumor I most likely had most or all of my life. I highly recommend 2nd and 3rd opinions and avoiding all unnecessary surgeries, and looking at inactive ingredients in all pharmaceuticals. Taking Elequis almost killed me, but my doctors thought it was the PE that I didn't have. I wish you all good luck navigating your health!!