Asymptomatic (silent) AFib

Posted by Patrick Elliott @elliott, Mar 31 8:26am

My Apple Watch indicates that I am in AFib 75% of the time, week after week. Two electrophysiologist, after viewing a battery of tests have decided to keep me there. BP has been controlled since 2011 with a calcium channel blocker and Eliquis. My concern is this—why is there no attempt being made to get me back into normal rythm. My reading tells me that all forms of AFib are damaging to the musculature of the heart. I am in excellent health and apart from AFib my heart is “normal”. I have never had a racing heart. So, I can’t understand why every attempt would be made to get me int normal sinus rhythm. BTW I think President Biden had the very same AFib as me. Thanks for any comments !!

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Good info ! I’m actually scheduled for a Holter Monitor next April. There seems to be no urgency for those of us on asymptomatic AFib. Afib was the only thing that showed up on my cardio and other stress testing. But, my Apple Watch, even this week, reports that I’m in AFib 82% of the time.

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@celia16

That’s a real mystery. My dad’s cardiologist immediately tried to treat my dad’s with meds. When that failed, he had cardioversion, which was successful. I might get at least another opinion.

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Hi Glad to see Cardioversion worked for your Dad !How long did he take medications before he did cardioversion!Thanks And God Bless You all !

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@gloaming

I'll repeat myself: AF does NOT kill you. The clot forming here and there, especially in the left atrial appendage, might, and that is why the prescription always includes anti-coagulants. The clot might kill us, but not AF itself. The anti-coagulant isn't prescribed to treat AF. It's prescribed to prevent clot formation. A clot, if it forms (it's only a probability deemed too high for ethical treatment) might migrate to either the brain or the heart, or both. If in the LAD, it means almost certain death, and if in the brain, a stroke.

To help to keep it separated, think of a person who has a Watchman implanted in her LAA, but who still has uncontrolled, perhaps permanent, AF. The AF won't kill her.

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This is not accurate medical advice. Afib kills and it can kill a number of different methods.
Without Afib you do not have a clot. A clot can begin to form in the first hour of Afib. So when clotting is a direct result of Afib and the clot(s) kill a person then Afib kills. Besides clotting Afib negatively affects perfusion and that causes problems with organ function and brain function. Inadequate perfusion results in unhealthy bodily functions. Overtime this degradation results in earlier death including dementia: so not only does Afib affect daily quality of life but it als Afib kills.
"Mortality and causes of death in patients with atrial fibrillation: A nationwide population-based" studyhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6306259/

"Patients with atrial fibrillation had a 4 times increased risk of mortality compared with the general population."

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You make my argument for me: '...Without Afib you do not have a clot...' This is obviously untrue since clots can form for all sorts of reasons. With four times the risk, you go from a weak to a severe risk of stroke due to clotting. However, the anti-coagulant is not given for the AF. It's given to mitigate the four-times risk of CLOTTING. Clotting can indeed kill, AF does not. It might degrade living, it can lead to heart failure, but little else is attributable to AF in the literature. Other factors come into play, or what are called comorbidities. They include diabetes, COPD, atherosclerosis, hypertension....and none of these is AF.

80M people across the globe live with AF, some without treatment. Many, most, go years before they die of other causes, whether from heart failure or the piling-on effect of renal failure, respiratory failure, peripheral artery disease, etc.

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@frankg

Hi Glad to see Cardioversion worked for your Dad !How long did he take medications before he did cardioversion!Thanks And God Bless You all !

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I’m trying to remember, but I think about 6 weeks.

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My 32 year old (at the time) son was asymptomatic- until he wasn't. Absolutely no co-morbidities. What took us to the ER was extreme weakness and shortness of breath. Very quickly determined that he was in A Fib. Finally stabilized enough. Transferred to big hospital. ECHO revealed his Ejection Fraction was 11. We were presented with the possibility of being put on the transplant list.
In ICU- on day 5- He had 2 strokes.
17 days in ICU and a total of 63 days in the hospital and inpatient rehab for the strokes.
His Cardiac care was transferred to the Mid American Heart Institute in KC. His new Cardiologist was even more gung ho about prevention of complications and death. He was immediately put on an External Defibrillator and he wore it for several weeks.
Looking back- I wish we had went directly to the Mid America Heart Institute. He had great care in his first hospital and rehab stay. But my take away message to all who will listen- The heart failure and arrhythmias - even though a very long road with soooo many procedures and appointments. Has been a piece of cake to manage compared to the stoke effects.
This far down the road- He's had multiple upon multiple heart procedures and appointments - 2 Ablations, implanted Loop Recorder, implanted a Watchman. Thankfully, by the Grace of God, the great care at Mid America Heart Institute and Entresto- His heart function is back to normal. He is off Eliquis and Plavix and will take a baby aspirin the rest of his life.
However, the life long effects of the 2 Strokes that resulted from the A fib is something that he will never fully recover from. Even at this point- he has done so much rehab, and made miraculous strides to recovery - I wouldn't know how to even put a number on how many hours in different settings he has done. It took him from teaching 5th grade math- to now not even sure he can ever teach or work at anything again.
A. Fib is nothing to ignore. 🙁

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One more consideration- If you haven't had a Sleep Study- please ask your dr. about one. My son also had 2 (at home) Sleep Studies while in the hospital. Also, needed an In Lab Sleep Study with a follow up Titration Study. Diagnosed with Central and Obstructive Sleep Apnea- and his number of apnea episodes was not nearly as many as a lot of people with Sleep Apnea. Even mild Sleep Apnea can contribute greatly to A. Fib.

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@gloaming

My understanding is that AF is an evolving, or a progressive, disorder of the heart. Some tolerate it and are largely unknowing, or asymptomatic, or simply don't want to do anything about it. Many know when they are in AF and it greatly interferes with their peace of mind and with their quality of life. Sleep is impacted, loved ones are nervous because you are agitated and pacing or have that 1000 yard stare, and there's often a feeling of lack of control and of dread. Some are breathless, feel the thumping in the chest wall, and have to belch all the time. It simply sucks for them.

You are fortunate to not have a 'racing heart.' What is your HR during the worst of AF? Most of us have AF between 90 and 140 BPM, and if it's higher it's probably flutter. My information, both orally given by an electrophysiologist and in written form on a precis given to me for recovery at home following a catheter ablation, was that an HR above 100 should not be left untreated after 24 continuous hours. The reason is the heart muscle can become fatigued, but it can also compromise the mitral valve eventually, and it forces the atrium to enlarge...and this causes it to stiffen.

Did they not offer a rationale for letting you remain in AF? Perhaps its because yours is self-controlled and stable, at least for now, and doesn't present a risk to you. AF doesn't kill us, but it can cause problems later that will make our health a challenge. An enlarged left atrium is one of them, as is a prolapsed mitral valve. If it progresses to supraventricular tachycardia, or you develop what is called 'rapid ventricular response', this is a potentially dangerous situation that needs to be addressed right away. But, I take it that it is only your atrium that is contracting chaotically, and there is no apparent ventricular response...it still beats on cue from the SA node.

Again, AF won't kill us. It makes us miserable, anxious, and feeling unwell. But it won't kill us. What your care team SHOULD BE doing is treating you on the basis of quality of life, how it impacts you, how much you'd like to have an ablation or be cardioverted (was that not offered?), your current level of AF (paroxysmal, persistent, or permanent), and on your prognosis. Maybe you need to go further afield and find another more sympathetic EP, hopefully one who is highly sought, very busy, highly experience, and in high demand. Two I am aware of (do not know them) are Dr. Andrea Natale at the Texas Cardiac Arrhythmia Institute in Austin (he travels to hospitals all over), and Dr. Santangeli at Cleveland Clinic.

Good luck.

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@gloaming ,
Agree and very good information given. My EP is Dr. Kusumoto the Pace Clinic Director at Mayo Clinic Jacksonville. He has written books, gives seminars, and trains others. He is worl reknown.

He advised same as you. AFIB biggest risk is blood clots not motality. So controlling it based on preventing strokes. I agree that AFIB is a real mental stress that patients have to deal with. Research shows stress will trigger AFIB and or make it worse so when you feel them, stress comes, and thus more AFIB.
I have it on an off but never sustained. I worry more about VFIB and is where my EP and Pace Clinic are focussed on. But like most patients the feeling of AFIB does not help either mentally or physically and I think more attention needs to be given helping reduce it even if just for the mental health of patients.

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@jc76

@gloaming ,
Agree and very good information given. My EP is Dr. Kusumoto the Pace Clinic Director at Mayo Clinic Jacksonville. He has written books, gives seminars, and trains others. He is worl reknown.

He advised same as you. AFIB biggest risk is blood clots not motality. So controlling it based on preventing strokes. I agree that AFIB is a real mental stress that patients have to deal with. Research shows stress will trigger AFIB and or make it worse so when you feel them, stress comes, and thus more AFIB.
I have it on an off but never sustained. I worry more about VFIB and is where my EP and Pace Clinic are focussed on. But like most patients the feeling of AFIB does not help either mentally or physically and I think more attention needs to be given helping reduce it even if just for the mental health of patients.

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Thanks for sharing your circumstances. I hope you find a way to get on top of it. I simply was very unhappy when fibrillating. I couldn't shake the anxiety, the thumping in my chest, the belching...it was awful. While medication worked wonderfully for three full years, I suddenly found myself losing ground to the disorder, and the symptoms came more frequently until I had to go to the ER for a cardioversion. While I was sedated, they zapped me three times with increasing joules, but none of them converted my heart rhythm. Eventually, I was offered an ablation. Fortunately, the second ablation worked, and I have lived normally, albeit with more weight than I'd like, ever since. The time to deal mechanically, i.e., via an ablation, is sooner rather than when it truly becomes awful, and more persistent. Get an ablation while you're still in the paroxysmal phase, which your case seems to be...thankfully.

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@harveywj

What Afib doesn't kill. Of course it does. Why do we take blood thinners if it doesn't kill? Think of all those poor people in 3rd world countries that do not have access to anti coagulants.
From the above mentioned book "Afib Cure": Atrial fibrillation strikes one in four American adults. Not only do people suffering from this condition suffer from shortness of breath, fatigue, chest discomfort, decreased ability to exercise and do activities of daily living, arrhythmia, and palpitations, but their risk of a stroke, cognitive decline and dementia, heart failure, or premature death also shoots way up."

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And those blood thinners can age you, too, especially if you are allergic to them. I had The Amulet implanted and do not have to take those poisons anymore. They cause more problems than they resolve.

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