Limited Scleroderma or CREST Syndrome: What helps?

@gkuntz114hayden Many people are treated in different ways. Treatment depends on the symptoms and their severity, co-existing medical conditions, and the patient’s overall health, plus what the doctor feels is best. I have clippers (lesions on the brain) and I’m surprised that others with clippers get different treatments
What has your doctor suggested as best treatment?

There is no cure. I had a difficult time with that for a long time. But I wake up every morning thanking God for giving me another day. Others have it worse than me. I had a friend who is blind tell me she would rather have what she has, macular degeneration than what I have any day. To say the least I shut down on her. People can be so very rude. Each of us have our own cross to bear, but I don't want anyone to feel sorry for me. I don't want pity.

How did you change your diet??? Friends of mine are trying to get me to do a glutin free diet. And I cannot give up my dairy I've given up meat mostly.

Honesty, everybody is different but I do lactaid milk instead of regular milk it has helped tremendously. The only yogurt I eat is that free fage. Sugar is really bad for me but I still need a small bite of chocolate almost everyday. I cut out a lot of breads I only have a occasionally and I definitely eat a green leafy salad everyday for minute foods are really good for the microbiomes so I eat sauerkraut everyday applesauce because I can't eat apples due to dentures are a prebiotic naturally. For a while I was intermittent fasting and that seemed like a great idea but I started to get a little weak in the morning so now I'm just doing small meals throughout the day. Depending on your symptoms you're just going to have to experiment and be your best advocate when it comes to the doctor. There are some great doctors out there but there are some really bad ones too that don't seem to even listen you just have to keep plugging along till you find who you connect with. I've had to tell my doctors more about my disease and they know because it's not that common. You can get on the site scleroderma foundation find lots of answers there also.

Honesty, everybody is different but I do lactaid milk instead of regular milk it has helped tremendously. The only yogurt I eat is that free fage. Sugar is really bad for me but I still need a small bite of chocolate almost everyday. I cut out a lot of breads I only have a occasionally and I definitely eat a green leafy salad everyday for minute foods are really good for the microbiomes so I eat sauerkraut everyday applesauce because I can't eat apples due to dentures are a prebiotic naturally. For a while I was intermittent fasting and that seemed like a great idea but I started to get a little weak in the morning so now I'm just doing small meals throughout the day. Depending on your symptoms you're just going to have to experiment and be your best advocate when it comes to the doctor. There are some great doctors out there but there are some really bad ones too that don't seem to even listen you just have to keep plugging along till you find who you connect with. I've had to tell my doctors more about my disease and they know because it's not that common. You can get on the site scleroderma foundation find lots of answers there also.

Thank you! I’ll read these! Much appreciated! If I had to prioritize in order of most painful to least at this point,
1- severe heartburn, reflux
2- pain and cramping in fingers and toes (my digit joints are actually starting to turn, and their really tight)
3- extremely dry skin
4- Reynauds mostly in my hands, is very painful (I use a boatload of handwarmers)
5- rapid heart rate (annoying not painful)

I have hard little bumps under my skin around my ankles; busted veins and capillaries on forehead lips and back; dry eyes, especially the left). I actually asked the doctor that diagnosed it, “what is CREST?” He said he really didn’t know. I’ll keep on looking.