Radiation for 70 yr old (glioblastomas grade 4)?

Hi @kaygee77, welcome. How is your mom doing? Has she completed radiation and chemo treatments?

There is a lot of research and talk going on right now about the issue of loneliness, apart of the type of loneliness that grief brings (which, having gone through that, I understand completely that feeling). In the UK they have even instituted a Ministry of Loneliness! (https://www.gov.uk/government/news/loneliness-minister-its-more-important-than-ever-to-take-action)
So many sites in the US are bemoaning a huge sense of loneliness in society which is contributing to "mental health issues" (https://www.cdc.gov/mentalhealth/learn/index.htm).
My point is, please realize you are not alone. Many people are feeling lonely, are grieving, are suffering. An antidote for that can be to purposefully do something nice for someone else every day or start talking to anyone and ask how they are. Once a conversation is initiated, it is surprising what people will share about their sufferings, and that can lead to you feeling open to share yours.
Finding the right spiritual group can be a huge help - which can be the right church, a gardening group, an art group, etc.
I hope you keep searching for others to share with - you'll find them.

She completed radiation and is on maintenance chemo once a month. Her follow up imaging wasn't ideal and they started her on Avastin infusions last month. She seems to be declining rather rapidly in our eyes, though the oncologist indicates the decline is slow. She is mostly incontinent and her short term memory is nearly non existent. I wish someone could just give us a road map to this awfulness... a way to mark our progress instead of staying in this weird place of half-grief.

@kaygee77, I remember that state of half-grief and travelling without a road map. It is an awkward limbo. I found a couple of articles that may help to prepare, although they will not be specific to your mom of course:
- What can be expected as brain cancer progresses? https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Support/Support/Asked+and+Answered/What+to+Expect+with+Various+Illnesses/Cancer/What+can+be+expected+as+brain+cancer+progresses_.aspx
- Final weeks and days: What to expect https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Final+Days/Final+weeks+and+days_+What+to+expect.aspx

Do you and your family have support from a palliative care team?

My dad was diagnosed with glioma today states aggressive form, he’s 71 fit and healthy just retired goes to the gym 3 x week, he’s like a 50yr old..
3 options given to us 1- symptom control - giving him months !
2/ biop with chemo/radio giving him 6/9 months
3/ Crainiotomy with treatment giving him 12 months ..
Shocked is not the words for it, he said but I feel ok how can this be!
Then watching my mum unravel how can she live without him after over 50 years of Marriage, now that was hard to watch.
He’s opted for the 3rd option and wants to live to se his grandchildren grow up..
Being a nurse myself I’m scared to loose my dad to surgery and treatments and having no quality of life . As he’s so active and full of it.
It’s totally his decision, of which I have to respect and that’s hard.
And the operation is booked for 1 weeks time..
What’s the outcome ?? Will he get more time ?? Will
He be able to live semi normal life ?
I’m scared, frightened for what’s to come.. my dad is a legend my hero xx

My partner Bill a 70 year old healthy man had a craniotomy October 3 to remove the glioblastoma stage 4 tumor and it was a success. Had some vision loss as the tumor had wrapped around the vision area. He was great after surgery. Walking, taking and seeing. Cognitively he has experienced some challenges and was told not to drive as his peripheral vision is bad. His incision healed well so was able to start 15 treatments of radiation and oral chemotherapy. Took a month off from treatment in December. Then started oral chemotherapy in January 5 days per month and every month since. He tolerated it well so dosage was increased in April . He is still tolerating it well. MRI’s so far have shown no progression. We have our 3rd MRI since the craniotomy next week. We have been traveling and he visits his grandkids in Denver every 8 weeks. Best wishes for your dad’s surgery. Keep me posted how he does.

Thank you this gives me some hope xx

Sorry about your friend
I'm in that situation right now with my dad it's a dilemma especially after seeing him in so much pain everytime he has radiotherapy sessions. It feels helpless seeing him like that. Just the other day he was healthy now he can't even walk by himself. It's just sad

This is what I am dreading for my dad too
He’s having the op Thursday and then for ) weeks radiotherapy 5 days a week … all so that he can live to be with us
The human will to live is so strong

It's just sad seeing him in pain. He even trembles when in pain.