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VYEPTI FOR MIGRAINES

Posted by richardfrancine @richardfrancine, Mar 22 7:43am

Has anyone tried Vyepti infusions for migraines? If so, if this therapy gave you relief, how many treatments did you need before getting relief? Does anyone know after how many unsuccessful attempts one should stop trying? In other words, what is the longest period of time it could take for Vyepti to work? Thank you for your feedback!

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caosborn | @caosborn | Apr 3 2:31pm
In reply to @jfn "Hi @caosborn , Have you seen a true cranial sacral physical therapist. Not just a pt..." + (show)
@jfn

Hi @caosborn ,
Have you seen a true cranial sacral physical therapist. Not just a pt that does CST? My TGN has been under control for the last 10 years thanks to a great practioner. My migraines are not as bad, the triggers for both do not go away, however my TGN does not control my life anymore, it fades after a trigger (mostly, there are just bad days), and I know I can see my CST if I am not recovering. I also take Baclofen daily. As for the migraines, Nurtec, worked wonders while on chemotherapy, after allergy issues. .. I have done PT and CST for the migraines too. Oddly enough, my first migraine occured when I was 8, too.
JFN

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I live in a rural area and a true CST would be 2-3 hours away for me.

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caosborn | @caosborn | Apr 3 2:32pm
In reply to @szucker99 "I still have some hidden under the sink! shhhhhh" + (show)
@szucker99

I still have some hidden under the sink! shhhhhh

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Hahaha. Good for you! Your secret is safe with me!

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jfn | @jfn | Apr 3 4:27pm
In reply to @caosborn "I live in a rural area and a true CST would be 2-3 hours away for..." + (show)
@caosborn

I live in a rural area and a true CST would be 2-3 hours away for me.

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Hi @caosborn
It is a minimum of 2 hours that I travel to see my CST, without traffic. I went yesterday, I feel so much better today! I leave 3 .5 hours for my 100 mile drive for most of my doctors. I have one doctor that is a 4 minute walk, not thrilled with tje doctor but with the other commutes....

JFN

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je16384 | @je16384 | Apr 4 10:40am

I have had several Vyept infusions it started working after several weeks. However, after 3 weeks it still was improving. What bad is you need a Break Through medication Nurtec for the headaches that are so bad the Vyept cannot stop. So it possible to just take Nurtec or Ubrelvy but you be taking those everyday. It is just not a one medication it's two depending you having migraines Chronic or Episodic. If you have Episodic the Nurtec should be fine without the Vyept. Both medications are very expensive. One nice thing is Abbvie has a myAbbVie Assist provides free AbbVie medicine to qualifying patients free. Phyzer on the other hand is not so generous and there patent assist will not have anyone that gets government health insurance, that military, medicare ect.

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je16384 | @je16384 | Apr 4 10:50am
In reply to @richardfrancine "Thank you for reaching out. I have tried everything in the book - chiropractors, beta blockers,..." + (show)
@richardfrancine

Thank you for reaching out. I have tried everything in the book - chiropractors, beta blockers, triptans, acupuncture, Botox, CGRP antagonists ( Aemovig, Mgality, Ubrelvy) and now I just had my fourth infusion of Vyepti. The first three made no difference in either the frequency or intensity. Thank you for any feedback. Francine

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It took several week Ubrelvy to work Nurtec worked rightway. Vyepti worked for me after several weeks. That being said you have to follow food restrictions, start salting your food more.
Chiropractors, beta blockers, triptans, and acupuncture are a waste of time. You should if not you should see a Migraine specialist.

There are plenty of foods, fake sugars, nuts ects I cannot eat or drink.

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stlandrypt | @stlandrypt | Apr 6 11:23am
In reply to @richardfrancine "Hi there! I sympathize so much with you. I also had my first migraine at the..." + (show)
@richardfrancine

Hi there! I sympathize so much with you. I also had my first migraine at the age of 8. It was so bad I remember it to this day (and I’m 77). I was sitting in class with tears streaming down my face - that was the first day of the rest of my life. I too tried every medication in the book, without success. You did not mention trying CGRP antagonists. Perhaps you could read up on this if you haven’t already tried them. They did not work for me. Perhaps one of them would for you! Take care. I wish you relief!

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Thank you. Yes, I have tried them all. Even over 1 year of IV infusion vyepti. Sorry about your migraines. We have to stay strong to not let them totally guide our lives.

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susanfalcon52 | @susanfalcon52 | Aug 13 6:41am

Has anyone had infusions of Vyepti quarterly? If so, what was the result?

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Aug 13 8:27am

Hello @susanfalcon52, I combined your discussion with an existing discussion titled, "VYEPTI FOR MIGRAINES" - https://connect.mayoclinic.org/discussion/vyepti-for-migraines/ so you could meet other members talking about this medication for migraine relief.

@stlandrypt and @je16384 recently discussed whether Vyepti worked for them and may be able to share their experience with you some more.

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