Benign fasciculation syndrome (BFS)

I am a very healthy 54 year old female who had an onset of full body twitching a few weeks ago. No other symptoms. Of course Google is giving me worst case scenarios which are absolutely terrifying and making me anxious. I can’t get into a neurologist until June. Have even thought of going to ER and maybe I could get in quicker. My family doctor diagnosed them as benign fasiculations.
Input from anyone on twitches??
I am going crazy thinking about the what ifs.

Multiple, body-wide fasciculations can be very alarming. I do understand. You said your primary said you have benign fasciculation disorder, right? Do you think you’ll feel more comfortable after seeing the neurologist? I developed the twitches right before my neurologist appointment, as I was going for something else. He ordered lab tests, MRI and EMG. They ruled out neurological disorders like Parkinson’s, MS and ALS. After that, my fasciculations left. Since that time, I’ve read about many people who have them. Before my experience, I don’t I ever read much about them at all. I hope yours resolve soon. It can be quite stressful.

I have experienced this as well. Sometimes the whole body jumps off the bed! Mine were never diagnosed and have abated somewhat over the years.

I am a very healthy 54 year old with an onset of all over twitching a few weeks ago. Seemed to coincide with some health anxiety. No other symptoms at this time. Of course Google is giving me worst case scenario which is absolutely terrifying and consuming me 24/7. I can’t see a neurologist until June. Have even thought of going to the ER with hope of getting in sooner. My doctor diagnosed them as benign fasiculations.
Any input on this disorder?
This is definitely getting the best of me thinking of the what-ifs.

@steige, you're asking good questions about body twitching and benign fasciculation. I've moved your posts to this related discussion about BFS where you can read the experiences of many members and connect with them easily:
- Benign fasciculation syndrome (BFS)
https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/

You might also be interested in these related BFS discussion I found using the community search function:
https://connect.mayoclinic.org/search/?search=benign+fasiculations

Did your doctor recommend next steps or suggest coping strategies?

The key with anything like this is weakness. Also stay off Google the anxiety and stress will make them worse

When I really started reading posts from people who actually have a condition like ALS, they said fasciculations weren’t the major symptom for them. Most said muscle weakness was the primary problem.

Oh my. Avoid benzodiazipines! Read about withdrawal. 🙏🏻🙏🏻

Benzodiazepine withdrawal is by far the worst thing I have ever gone through in my life. And I am not alone. There are thousands of us in Facebook groups alone, who experienced many of these odd neurological symptoms. Of course, you can never say for sure that that’s what it is it’s just that the way we describe our symptoms are almost identical, and nothing I would have ever been able to put into words if I hadn’t seen other people trying to describe it.

Didn't think this thread would go this long. I started the initial post over five years ago. I'm still twitching, not as awful as it was when it first started. No weakness or loss of ability thankfully. If I go by what I've read online, I should be clear of anything serious. I still see a neurologist once every 6 months, more for peace of mind. If I get a hotspot, I take Clonotril(Clonazepam) 0.5mg in the evening before bed for a few nights and the hotspot goes away. Whatever this is, it's a curse that will likely never go away, which makes me deeply sad. But I've learned to live with it and have a few ways to mitigate it when it gets really bad. The Reddit forum helped me a lot through this.