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Interested in how other caregivers survive

Caregivers | Last Active: Aug 4 11:08am | Replies (123)

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@rosemarya

@mariancauwel, I am glad that my suggesti0n was helpful for you. I thing that anything that makes day-to-day life less stressful for a caregiver is worth a try. Be assured that you are going thru a 'Learn as you go" experience. There is not any one way that works for everybody. One thing that I want to offer is that your daughter's transplant team will guide you on her after surgery care. They will be teaching you during the post surgery recovery, and will continue to do so when she returns home.

I love your image of having a cup of coffee and talking/listening to someone. That is what we want members to be comfortable with as they offer support and receive encouragement from others who have similar experiences. I want to help you to connect you with others who are like you and talking about transplants. Did you know that all transplant patients/caregivers no matter which organ, have similar fears, needs, and concerns?
I understand how the tech part of communicating can be confusing. So Here is ath link to the Transplant Support Group Discussiions. If you click on the blue link, you will have access to all of the transploant related discussion groups. You are welcome to make a comment or question on any of them.
- Transplant Support Group
https://connect.mayoclinic.org/group/transplants/
To get you started, I am going to invite you to the discussion,SPK (simultaneous pancreas and kidney) transplants. You can simply respond to my posted comment. I'll be looking forward to coffee and some transplant conversation. Oh, I do like my coffee black!

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Replies to "@mariancauwel, I am glad that my suggesti0n was helpful for you. I thing that anything that..."

@rosemarya Thank you so much for your support Is so great to know your out there, I am going to keep a journal starting the day we receive the call, Marlo and I are packing our bag for the hospital. Marlo has excellent communication with the Mayo Staff, our experience is they are so kind. Been doing de-cluttering, it’s a good thing. Just know if I can offer encouragement or support to anyone, I will, having our Faith gives us strength too. I love my coffee black, a few great strawberries and a small pecan pastry. Not all the time of course but once in a while..have a great weekend.