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Interested in how other caregivers survive
Caregivers | Last Active: Aug 4 11:08am | Replies (123)Comment receiving replies
@rosemarya hi! This is mariancauwel, my daughter is on the list, pancrease and kidney, I am still trying to navigate the tech stuff to really talk back and forth, I loved what you said about only do the must in the housekeeping I am trying to sterilize and what I really need is a friend caregiver that I can turn to, have a coffee and talk and listen as to how to help Marlo get thru this in the best outcome ways. Thank you for being my friend that I can’t see, just great to know ur not alone. We have a deep Faith but just nice to turn to someone who knows. Thank you.
Replies to "@rosemarya hi! This is mariancauwel, my daughter is on the list, pancrease and kidney, I am..."
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@mariancauwel, I am glad that my suggesti0n was helpful for you. I thing that anything that makes day-to-day life less stressful for a caregiver is worth a try. Be assured that you are going thru a 'Learn as you go" experience. There is not any one way that works for everybody. One thing that I want to offer is that your daughter's transplant team will guide you on her after surgery care. They will be teaching you during the post surgery recovery, and will continue to do so when she returns home.
I love your image of having a cup of coffee and talking/listening to someone. That is what we want members to be comfortable with as they offer support and receive encouragement from others who have similar experiences. I want to help you to connect you with others who are like you and talking about transplants. Did you know that all transplant patients/caregivers no matter which organ, have similar fears, needs, and concerns?
I understand how the tech part of communicating can be confusing. So Here is ath link to the Transplant Support Group Discussiions. If you click on the blue link, you will have access to all of the transploant related discussion groups. You are welcome to make a comment or question on any of them.
- Transplant Support Group
https://connect.mayoclinic.org/group/transplants/
To get you started, I am going to invite you to the discussion,SPK (simultaneous pancreas and kidney) transplants. You can simply respond to my posted comment. I'll be looking forward to coffee and some transplant conversation. Oh, I do like my coffee black!