Nope

I was diagnosed in Dec. 2024. I thought I had the flu, it was really bad. I got my bowels under control by having liquids only then slowly introduced some foods back and things got better and fairly normal, but my PCP said I should have a Colonoscopy anyway and glad I did bc that was when the MC was discovered, I am on Budenesodine as a taper medication. I will be on it for 4 months. I have an 3 autoimmune conditions that my doctor feels is the cause, but I guess we will never know really what caused it. I take omeprazole for GERD currently. My Gastro. Said that couldn’t cause the condition because I haven’t been on it very long and I only take 20mg daily. I am doing well and find Dairy to be a trigger but only certain dairy products. I see my Gastro, for follow up at the end of June. Not sure if I have to be on this all the time or if once your done do you stop altogether and see or is this drug forever?

I should follow up to say that like many collagenous colitis patients who successfully completed a course of budesonide from 9mg to none, i have relapsed a second time. So I am now on permanent maintenance of 3mg/day. The thinking has evolved as they observed the relapse rate. I’m doing ok. Not happy to be on a maintenance drug not of my choosing. But que sera.

I was diagnosed with lymphacytic colitis over two years ago,have had four rounds of Budesimide,3 months each,with 9mg,6 mg,and 3 mg.i started having side effects ,weakness, thinning skin and petechaie on my arms,I have been off of it for a month,taking Colesevelam 625 mg,2 twice a day which is doing nothing for my diarrhea,my GI doc ordered Xifaxan which the insurance did not approve. My Dr said I was on the lowest dosage of Budesimide,he has never ordered any bloodwork,I am having a cat scan next Wednesday.Any advice or new ideas out there?

Hello boy4. I am Pam and I have microscopic colitis, collagenous variety. It hit me out of the blue in 2019 and was sheer hell. After red herrings and dead ends while I was literally on house arrest. I was fortunate to find an ace Doc. I was treated initially with a full course of Budesonide. It was a miracle drug within days! And then a year later i relapsed. Another shorter round of Budesonide. Then a year later I relapsed again. Now I am on lowest dose as maintenance. So far so good.
This relapsing is sadly not uncommon. But we are lucky.

So. Known and validated medication triggers are

SAIDs:
NSAIDs, including ibuprofen and aspirin, are commonly associated with both LC and CC. Studies have shown a strong association between NSAID use and an increased risk of CC, and rechallenge with NSAIDs can lead to recurrence of symptoms.
PPIs:
PPIs, particularly lansoprazole, have also been linked to both LC and CC.
SSRIs:
Selective serotonin reuptake inhibitors (SSRIs), especially sertraline, are another class of medications that have been associated with microscopic colitis, including both subtypes.

I have been off NSAIDs and PPIs for three years now. Ditto for PPIs. I take Pepcid instead as it is not associated with this disease. I went off my SSRI and then phased back in with no adverse result.

I drink minimally because I also have RA and treatments for that are hard on livers. But some people report avoiding it for colitis.

I did a lot of research on therapeutic dosing of anti diarrheals. I settled on Pepto bismol, liquid caps. I took 3 caps 3 times a day. An entire study was done with that dose. And it worked. Stools turn black and sometimes your tongue does too. But I could have cared less. . Once it seemed under control I reduced to 2caps three times a day. And then 2 caps twice a day.. give each reduction time. No point in having to start over.

I did a BRAT diet when i was flaring. Just avoid roughage. I began to add small amounts of fairly bland sautéed ground turkey NO DAIRY OR SODAs!!!
when you start adding foods back, easy does it. Add back one food at a time.

Good luck. It is a wicked witch of a disease but it can be managed if not conquered.

Happy to answer any questions you have.

I was diagnosed with microscopic colitis several years ago. I would go into remission for months at a time and have occasional flareups. This current flareup has lasted several months. I choose not to go on a steroid medication. Has anyone tried a naturopathic route? There are colon cleanse regimens too. I started taking turmeric daily, which seems to help some. My Dr. referred me to a functional medicine doctor (haven’t seen yet) I’m also trying to follow a colitis, friendly diet plan and go gluten-free. Quite the adjustment. Would love hear other’s Views on this. Thanks