I have the sister version of microscopic colitis - collagenous colitis -

When you say you take Budesonide on and off, how long was your first course of it? Mine was 3 months, stepping down from 9mg a day to none.

Mine was three months also,tapering down.im on my third course of it,I went 5 weeks off of it this last time,then i started having flare ups again..my doctor wanted to order something that was going to cost me over $400.00 for one month,and I couldn’t afford it.
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Have you priced it on GoodRX and SingleCare? You’d be surprised what a difference it can make. I take a drug twice a week that 2 mos worth is over $300. But the good RX price at a grocery store pharmacy is $67.

You would have to explain that.

Sadly yes but low dose (10mg generic crestor). Until I added Magnesium L-Threonate supplement, the statin left me frustratingly constipated and even chewing benefiber gummies every night wasn’t enough for a daily routine. That’s solved now, So I’ve added antidepressant and statin back to my regiment without relapsing the colitis.

I have collagenous colitis and can't seem to taper off the Budesonide. On my third attempt now, with a taper scheduled to start at the end of this month. My dental hygienist has lymphocytic colitis and has discovered that sugar alcohols cause her to flare. These are sweeteners like sorbitol, erythritol, etc. so if you are still ingesting those you may want to stop.

Yea they’re nasty stuff. Monk fruit is the exception I think.

I had a bout of it several years ago. Discovered very belatedly that it was caused by a prescription med for GERD, the name of which I've now forgotten. Switched to Pepcid and had the same problem, though to a lesser degree. Am extremely careful with that med, only use it when in extreme esophageal distress.

Pepcid daily for years was the cause of my lymphocytic colitis (as per Mayo Dr). Budesidine helped, but Mayo Dr's don't want me on it regularly due to its long-term effects. I try managing with foods; it's tough but I'm not one for medicating my 79-year-old body other than Imodium occasionally. Hang in there; I'm grateful this surfaced while I was in my 70's and not in my 50's.

I’m just going to add that I hope you are all using goodRX to get a Much Better price on Budesonide.