← Return to Blood clot disorders: How does this affect your quality of life?

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@loribmt

Yvonne, If you haven’t returned to your oncologist or you are no longer on blood thinners since Covid began in 2020, I really urge you to see that doctor or at least your primary care physician very soon. You could be in great risk for the return of DVTs with catastrophic side effects!

Factor V Leiden is an inherited genetic blood clotting disorder where the patient tends to form abnormal blood clots. From my understanding not everyone with Factor V Leiden will have symptoms. But if they have a history of clotting their doctors will prescribe blood thinners to prevent potential life threatening clots. Considering you have an history of DVTs and also have 2 other related clotting disorders, these really do need to be taken very seriously.
Here’s a little information to help you better understand your blood disorders:
https://www.mayoclinic.org/diseases-conditions/factor-v-leiden/symptoms-causes/syc-20372423
https://medlineplus.gov/genetics/condition/factor-v-leiden-thrombophilia/
There are discussions in Connect with members such as @patientk @piglit @sherohio @susangourdlady @mlemieux and others who have written about living with factor V leiden and related mutations.
Anybody Else have Factor V Leiden?
https://connect.mayoclinic.org/discussion/anybody-else-have-factor-2-and-factor-v-leiden/
Are you on any blood thinners now?

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Replies to "Yvonne, If you haven’t returned to your oncologist or you are no longer on blood thinners..."

No I’m not on any medication I also have thyroid issues narcolepsy and cataplexy. I am going to make an appointment to get back on all meds and be under the care of a Dr again.My medical care takes up more time than a full time job it’s very difficult to do with the narcolepsy.