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Anyone else dealing with Demodex Mites? What helps?

Skin Health | Last Active: 2 days ago | Replies (161)

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@cmcg

Hi! I am at the one year mark… hard to believe and w much trial and error! Bless you w testing the water temp of your washer! I never tested the temp but washed all clothes and dried all clothes on the hot cycle! I started last year with what I think ( no biopsies) was brevis all over my body and foliculorum on my chest, neck, eyes, ears, nose and scalp. Interestingly, my whole body symptoms disappeared w two rounds of oral ivermectin ( likely brevis?) but didn’t touch the folliculorum. I had actually started using TTO ( mixed w other oil and don’t know per cent) all over my body for a couple of weeks and then finally saw my dermatologist ( who I think thought I was crazy!) but ordered the Ivermectin. She mentioned to me at the time that Paul Mitchell had TTO shampoo that I might want to try. I started using the TTO products but then tried topical ivermectin and metronidazol for 8 weeks while cleaning my lashes w Avenova and using X-Demvy ( this was through summer and early fall). The symptoms were better but not gone. I realized then that the more realistic goal might be control vs eradication (I have no immunosuppression, BTW). As I read more and more literature… TTO seemed to be the only think known to kill the Demodex. So, I decided to add some additional TTO (100%) to my 10 oz bottles of Tea Tree Special shampoo and combo leave in hair condition/body lotion to increase the concentration of TTO in these products. To be somewhat scientific, I added 1 ml of 100% TTO to the above 10 oz products and have used those products daily and have been in the best control that I have ever been in over the past year. I do daily shower/shampoo w the shampoo….I leave on my face (eyes, ears, nose) and scalp for a couple of minutes. Then after shower, I apply the leave in condition/body lotion all over my body including Face, scalp, etc. I repeat this application once during the day and then before going to bed. My skin is dry for sure. And I find myself differentiating itching due to Demodex vs dry skin. My legs were so dry, I tried this week using regular lotion on my legs. I have tried facial lotion and make up a couple of times but have developed symptoms. I have gone all year without makeup… except for 3-4 special occasions. Each time I developed symptoms, so I am holding off on make up for now. Hope this is helpful. I have learned so much from this group. Hope others will weigh in with their experience. If I were to give advice, I would recommend trying the TTO products w added TTO for 2 months before investing in a lot of the expensive products. And oh, back to the washer and dryer…. I will likely always use the hot cycle going forward. And I have reduced washing my bedding to every 3-4 days( from daily). And I have gone back to regular washing of my clothing (from wearing everything only one day and then washing). I have included a photo of the Mitchell products ( John Paul Mitchell listed as distributors on back in fine print). I do not have a photo of the leave in Conditioner/ body wash but you can find it on Amazon and I got it at either CVS or Target.

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Replies to "Hi! I am at the one year mark… hard to believe and w much trial and..."

Thanks for all the info. I wish my hot wash water could be higher. 130 degrees would be better. On laundry you can't use bleach on many things, so I've been putting white vinegar in some laundry loads . There was no scent after a single rinse. I think it did bleach the towels a bit but that's ok. No idea if its really beneficial but it makes me feel better . I got some Tea Tree Special shampoo recently. Did you have any negative reactions to the oral ivermectin? I realize I need to be more aggressive and will add even more TTO to products. I read (along the way, didn't save article) that overly dry skin is a negative and skin needs to be hydrated. Mites like dry . I never stopped using lotion on my legs and arms which didn't have any mites that I was aware of, and have Cetaphil oil-free hydrating lotion that I am cautiously putting on my face and neck. I want to find out how long these mites live outside the host, on clothing or where ever they fall or rub off . My impression is that I am engulfed. I removed a black head band after washing my face yesterday and saw teeny, tiny white specks that must mites. Exactly uniform in shape and size , so what else could it be ? I remained calm, did not scream . I hope I can maintain sanity dealing with this and suspect that it's going to be a long journey. Having access to this forum is a life saver. Thank you for your comments .

Thank you for your in-depth post. It is very helpful.