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Second Opinions: How do I get one at Mayo Clinic out-of state?

Blood Cancers & Disorders | Last Active: Apr 2 8:03am | Replies (12)
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@vgdmayo

My husband has recently been diagnosed with Waldenstrom macroglobulinemia. He has a hematologist/oncologist who currently has five patients with Waldenstroms but has never treated it. His other patients have been on watch and wait or have been treated in the past by different MD’s but don’t need treatment now. My husband is in the watch and wait category. We both are a little concerned about the physicians lack of experience in treating it but we are also living a long way away from any Mayo Clinic.
My question is when he needs treatment is there a way to get a second opinion on that aspect without a physical appointment?

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Replies to "My husband has recently been diagnosed with Waldenstrom macroglobulinemia. He has a hematologist/oncologist who currently has..."
Lori, Volunteer Mentor | @loribmt | Mar 29 3:14pm

Welcome to Connect, @vgdmayo I really can’t answer as to whether or not your husband could get a second opinion without being seen in person. Each person’s situation is unique to them. But I do know of a couple of people who have had their second opinion via Tele-health after a doctor at Mayo was able to review their blood work and tests from an outside source.

I can understand your hesitancy with having your husband’s doctor not being very familiar with WM and not a clear track record on how to treat. I’d get a second opinion too!
Instead of waiting until your husband does require treatment you could have that second opinion before/if his condition progresses. That way you have time to make decisions without urgency.

The best way to find out is to give Mayo a call. Or go online to this site: http://mayocl.in/1mtmR63

There are 3 locations for clinics: Rochester, Minnesota
Central Appointment Office
507-538-3270
7 a.m. to 6 p.m. Central time
Monday through Friday

Phoenix/Scottsdale, Arizona
Central Appointment Office
480-301-8484
8 a.m. to 5 p.m. Mountain time
Monday through Friday

Jacksonville, Florida
Central Appointment Office
904-953-0853
8 a.m. to 5 p.m. Eastern time
Monday through Friday

We have several discussions in the forum with other WM members. This would be a good place to begin:

Waldenström's Macroglobulinemia With members @ejrquast @mrgreentea @artmulh @champ9810 and many others how have WM.
https://connect.mayoclinic.org/discussion/waldenstrms-macroglobulinemia/
A little more info for you:
https://www.healthline.com/health/macroglobulinemia-of-waldenstrom
Also an excellent source of information is the International WM foundation: https://iwmf.com/

If Mayo isn’t convenient, do you live near a larger teaching clinic/hospital?

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