EBV - Reactivation / Chronic EBV

Hi @worriedmom123, it looks like you are looking for professional help. If you would like your son to be seen by Mayo Clinic experts, please consider requesting an appointment. Here's the link to get started: http://mayocl.in/1mtmR63

Check out HealthRising web site. Info from Yale, etc., doctors, medical school researchers.
Find a GOOD, progressive naturopath. Both Vitamin B-12 and C IVs.
Lots of good, solid NIH, CDC info on this but you must look for it.
Most MDs don't acknowledge.
I know from experience - long time EBV reactivation patient.
You're lucky someone at least knew to order the tests for you!
MDs willing to do so, or who are able to read them are few and far between
although much better now because of EBVs relationship with long covid.
Stay away from energy drinks hoping to find strength. Most contain
arginine, which helps soften the shell of the virus, releasing it.
(Rudimentary explanation, sorry) Please just use these suggestions to
help you in your search. Best wishes for you and your son for his recovery!

Mag Again, I forgot to add that many years ago when I was first diagnosed
by Bastyr, they prescribed Lyzine, Astra-isitis, and monolaurin several times
a day. It took ten days for the combination to put me in remission and I
stayed there for quite a few years as long as I continued to take it. I don't believe they will work individually. It's the combination that works. Astra-isitis
used to be hard to find, but readily available now.

Can you tell me the brands and doses of the lysine,monolaurin, and astra-itis you use. How often did you take them to get ebv under control? And then what was your maintenance dose. How often are you doing Vit C IVs. And how much B 12 are you taking. How were you diagnosed?

Lysine is very common, and I'm not brand specific as long as I get it from a good soure that I trust (compound pharmacy?) Twice a day forever. It may have been more to start with. Sorry - it's been 15 years since originally put on protocol. 500mgs is what I've always taken, but now that it is available in 1000mgs I may take that.
Astra-Isitis is harder to find. Health Concerns is the only brand I've ever used, and may be the only one available. I THINK it was two capsules three times a day. It's fairly expensive.
Monolaurin is coconut based. Ecological Formulas is the brand I've always
used. 600mgs twice a day.
They work together. It's kind of an all or nothing deal, except maybe for
the lysine which I take even if in remission.
---I'm so many years into this, it doesn't seem to work like it used to if I
have a flare. I'm not a doctor, but my take is that the virus drills down
ever deeper with each flare, and it gets harder to get back into remission.
The protocol for the IVs is B-12 (dose ?) with 50 grams/units (?) of vit C twice
a week for six weeks to force into remission. Expensive! I feel SO much
better when I have the IVs. There is also some success with ozone drip but
I don't tolerate that well. I also cannot do hyperbaric oxygen because of sinus issues, but it is said to help with EBV and is not terribly expensive.
Many naturopathic doctors have them.
My EBV was in remission for many years until I got COVID, and then long haul covid. The NIH sites have quite a bit of information about the connection between Covid and EBV. Nothing readily available, and seemingly unknown to doctors. I find that many good (not all) naturopaths are light years ahead of traditional medicine when it comes to EBV.
I am now just beginning to respond to some of the really off the wall
treatments referred to from the 'HealthRising' web site. NOT recommending
anything mentioned there. Just throwing it out for those who like me are
so into this that we need to reach further. The site is run by well respected
researchers and doctors trying to get to the bottom of this mess. I even went so far as sign up for a trial, and signed my sister up for the control group.
I wish you luck and fortitude in your search for help.

magbatt,
Thank you for sharing your information. I am just beginning the point of "something's not right" feeling. I have had epstein-barr for at least 5 years and for the past three months I feel exhausted, achy like the flu and a sore throat, especially when I breath in. I get very winded easily. My ENT just put me on prilosec. Not sure what that is going to do. My regular dr has had me on acyclovir for the past three years, not sure that does anything. I have been getting vit c ivs off and on and it does help for a few days with not feeling like the flu, I can move and work.
I will try your protocol of the lysine, up the vit c iv's to once a week instead of every 3 weeks, talk to my dr about the 50gram/units of B12 shots and the other medicines you mentioned previously. I have heard something about stem cells but I think I need to find a dr familiar with the disease first.
Thanks again for your contribution and look forward to any other advice.

Has anyone had good results with taking an antiviral medication for reactivated EBV? I’ve been using lysine, monolaurin, zinc, Vit d, for years and I’ve been feeling worse lately. I’ve not been able to work since Covid reactivated my EBV. Just checked and my values went up instead of down. Recently had both my dogs pass within 8 weeks of each other so maybe it’s the stress. I don’t tolerate medications well at all so just wondering how I would feel on an anti viral.

Hi @lindy1965 I found at least one member who has taken antiviral medication with some success for treating EBV and shared with the group.
I’ve posted the comment below:
Epstein Barr Nuclear AG AB IGG result of over 600
https://connect.mayoclinic.org/comment/889390/
Hopefully @kenforce will be able to give you some helpful information.

I’m so sorry for the loss of your sweet dogs. I can’t imagine losing both of them so closely together. Our fur babies leave such a big hole in our hearts when they’re gone. Sending a hug.

Thank you so much. I am heartbroken.

Hello!
How are you and your son?
Is he better?
Imy daughter has the same results of vca igg and ebna igg.
Doctor say she has mono in past..but she has symptoms and they come and gone..:(