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Anyone else dealing with Demodex Mites? What helps?
Skin Health | Last Active: Sep 17 9:54pm | Replies (181)Comment receiving replies
To say that Demodex are not harmful tells me you aren't living with the problems they cause. Yes, my dermatologist says that Demodex are part of our human flora and has mixed feelings about eradicating them since we do need them. However I am on this forum - and assume others are, too - because we are truly suffering from infestations in our eyes, hair and bodies. The quality of our lives has suffered because of Demodex, so I cannot agree that they are not harmful. Before doing self treatment and then taking XDEMVY plus self treatment, my vision was impaired and I had a 24-hour headache on the side where my vision was the worst. Waking up and being able to open my eyes was a true challenge and required a lot of night-before preparation. Medical professionals (a dry-eye specialist and two other ophthalmologists) didn't tell me that a Demodex infestation was the cause of my problems. Then I questioned whether my dry eye would impact my much-needed cataract surgery and was only then told about them. I'd never heard the word DEMODEX before then. Why is that?
I don't understand why our suffering is allowed to continue while our doctors ignore the real problem - Demodex. We'd like to have a better quality of life and wish others could understand what we live with.
We get your point that our overdoing eradication can be worse, but we're desperate. Doesn't anyone see that?
We know we will always have Demodex, but it's important that medical professionals wake up, get educated, and stop pretending there's no problem.
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Demodox are immune to so many things and hard to get under control. They've lived in our ecosystem for how long and with all the things we eat, take, and put on our skin it's almost impossible it seems to treat. Most Doctors haven't a clue and usually misdiagnose. There is also the misconception that they are microscopic even in a person that has a severe case of demodicosis. You can see them at that point. You can even feel them. You cannot see the true body of course with the naked eye, however they are visible. I believe I posted a pic of one that was huge compared to being microscopic. I had about 5 large ones come out of pores on my lower face. It freaked me out that I didn't take a pic of that, however I took a pic of one that was removed. Drs etc ignore when I show it to them and do not believe it.
It happened to me. I couldn't believe it either when it was happening, however it did. Our healthcare system is way off in a lot of areas with parasites, Demodex, and other conditions they can't explain and refuse to find out. It's like Morgellons almost. I watched that documentary Skin Deep about it and so many similarities in dealing with the condition. The body manufactured the fibers under their skin. The body in the case of Demodex is almost attacking itself so to speak. There is a correlation with the immune system, stress, oily skin, and probably the gut and antibiotics. Drs associate Demodex with Rosacea and diagnose as such. They also call it that with the results of a biopsy a lot of time. It's crazy that there's little to no help for people that have this condition. You can look it up and find that it is indeed a condition with a name when the numbers are way too high, however getting treated for it is a different story.
I've tried so much stuff just like so many. I'm now waiting to try Isotretinoin/Acutane from a Dermatologist I finally found that is at least more open to this condition. He still doesn't quite understand or believe the hell it has caused me etc, but at least he is trying to help me. So many DR's gaslight their patients instead of trying to listen and understand. I also had him take a biopsy of a place near the corner of my mouth. He did not want to and I begged him. The results haven't gotten back yet, but I'm sure it will be the same as one other I had from a different Dermatologist. (Rosacea type Dermatitis) SMH
You can clearly see this stuff on/within my face. I cannot wear makeup at all. It is worse with makeup. It's like trying to cover sandpaper. My case is extreme. I told them I should be a case study. I've had 2 DRs try to refer me to Wake Forest, but no response back from Wake. No one wants to study or research this condition further. My heart goes out to you all. I understand the hell/harm/destruction it causes.