Autonomic nervous system disorder: No diagnosis or help yet
Two years ago I started having what appears to be possible autonomic nervous system malfunction. It started out with pins and needles and numbness in all of my extremities, visual disturbances, bowel disturbances, even paralysis of parts of my body would just go dead numb. What is worse is that these episodes come on out of nowhere and they have progressed to where I suffer almost every day now. The worst part of these episodes are that my spatial awareness, the way I feel sensory wise is totally off. So far no doctor has been able to figure out what's wrong with me from a neurologist to endocrinologist to cardiologist. I even have tachycardia many times during these events and from head to toe I feel absolutely sick head to toe. I am at my wit's end I need to find some doctor that knows what's going on and if this is disorder know me or an autonomic nervous system malfunction I need help. I just cannot believe in the United States of America that so many different doctors I've seen over 2 years with dozens upon dozens of tests and blood workup and no one can figure this out.
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Did you ever find any help. I have the same but with runs of SVT and seizures. Im waiting to get into Iowa City Clinic.
Emmy
Hi, I also am suffering from dysautonomia with symptoms similar to those associated with autonomic dysreflexia. High blood pressure spikes accompanied by nausea, vomiting, sweating. My vision is often affected by being out-of-focus, doubled or distorted around the periphery. Sometimes it feels that my head will explode. I worry about having a stroke constantly. I have been having these episodes one to two times per week for about two years along with severe neck pain, pain in my shoulder blade, scapula and numbness in my arms. I have had four MRIs, one CAT scan of my neck and brain. The neck scans show disc degeneration, spinal stenosis and a narrowing of foremen’s on both the left and right sides of the cervical spine in the area of C4/C5. The osteopathic and neurological surgeons (5) see no connection between the stenosis, foremen narrowing and my symptoms. I have found two case studies reported in the journal of the NIH where decompression of the spine have alleviated these symptoms. I have been able to lessen the frequency and severity of these symptoms by not overextending my neck by looking up at a severe angle.
None of the doctors that I have consulted will consider AFDC to decompress the spine based solely on relieving these symptoms as the condition of my cervical spine isn’t severe enough to warrant the procedure. So I am in ‘limbo’ with no resolution in sight.