1. < Post-COVID Recovery & COVID-19

Multiple Strange and New symptoms after Covid

Posted by jmac84 @jmac84, Mar 13 3:43pm

Id like to start this by asking are there others out there vaccinated versus not vaccinated STILL experiencing strange long covid symptoms? Do they appear to morph or change into more and more or do they seem like they are diminishing as time goes on? My mainstay longterm symptoms vary from constant eye floaters, dry stuffy nose, dry mouth, tingling on my face , eyelids, mouth and ears, abdominal pains, muscle aches, lymphadenopathy on right side of neck, arm pits and groin, and now what feels like proctitis and IBD/ulcerative colitis symptoms. The list keeps multiplying for me. Does ANYONE else experience these symptoms?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

goldenbo | @goldenbo | Mar 23 6:39pm
In reply to @jeindc "What horrific symptoms that have resulted in more tsuris - Yiddish for “troubles” bc it is..." + (show)
@jeindc

What horrific symptoms that have resulted in more tsuris - Yiddish for “troubles” bc it is the only word that fit for me.
My symptoms are different and continuing since late March 2023 when I got COVID and after one dose was taken off paxlovid bc of reaction.*

My PCP’s practice has NO ONE among multiple docs even following the issues - I use google alerts for long COVID which has lead to this group and a ton of scholarly and other articles. It should be a SOP for all general medicine docs to follow.

The exhaustion that I wasn’t feeling at first was added. It began after the latest CDC-advised 65+ addl vax. I feel fortunate that brain fog hasn’t been an issue or I couldn’t work.

*Paxlovid reaction: my heart raced, I felt as if adrenaline was coursing through me, & until it seemed to get through my system, I couldn’t sleep for a full 24 hours when my body craved rest from feeling awful.

Jump to this post

How do you sign up for google alerts for long covid? (or any google alert!)

My PCP has been absolutely amazing - stays on top of everything. Much better than some of the specialists. When I got covid a second time she did not try paxlovid but a newer, gentler anti-viral. It was like a miracle. I wish I could remember the name but LC cognitive impairment has messed up my memory in addition to other things. It would be wonderful if they came up with something like that for LC!

REPLY
1 reply
jeindc | @jeindc | Mar 23 10:14pm
In reply to @goldenbo "How do you sign up for google alerts for long covid? (or any google alert!) My..." + (show)
@goldenbo

How do you sign up for google alerts for long covid? (or any google alert!)

My PCP has been absolutely amazing - stays on top of everything. Much better than some of the specialists. When I got covid a second time she did not try paxlovid but a newer, gentler anti-viral. It was like a miracle. I wish I could remember the name but LC cognitive impairment has messed up my memory in addition to other things. It would be wonderful if they came up with something like that for LC!

Jump to this post

If you’re in DC Metro area I want to go to your PCP! The entire practice of mine has no one reading.
Go to google.com/alerts
There you can sign up for any topic. I use for work, writers I like, and this. You can specify from where (region) and how often. It’s a great way to have access.

REPLY
1 reply
lkirnbauer | @lkirnbauer | Mar 24 8:48am
In reply to @whoesonfirst "Oh yes, a few other nasty habit of this Long Covid, some symptoms will take a..." + (show)
@whoesonfirst

Oh yes, a few other nasty habit of this Long Covid, some symptoms will take a bit of a vacation. Don't be fooled, It's like a spring break, or 3 days weekend. They may come back. Or, they leave and another completely different symptoms appear.
Good luck to everyone! Stay positive as you can, Good health to all!!!
SpicyKim

Jump to this post

Yes, I’ve been on quite a long vacation with loss of taste/smell since December of 2022! Coming back very very slowly, with having had 2 Stellate Ganglion Block injections. Going for a 3rd next week!🙏

REPLY
goldenbo | @goldenbo | Mar 24 11:19am
In reply to @jeindc "If you’re in DC Metro area I want to go to your PCP! The entire practice..." + (show)
@jeindc

If you’re in DC Metro area I want to go to your PCP! The entire practice of mine has no one reading.
Go to google.com/alerts
There you can sign up for any topic. I use for work, writers I like, and this. You can specify from where (region) and how often. It’s a great way to have access.

Jump to this post

I'm so sorry - I live in south Jersey, and my PCP is in north Jersey - I can't give her up even though we moved 4 years ago!

Thank you so much the alert info.

I reached out Dr. Tam, who does not treat in New Jersey, but said she is willing to join an appointment with me via phone to assist in setting up a treatment plan. I was impressed with that offer. I heard about her on this site and was impressed. I'm now more impressed. She focuses on LC and ME/CFS.

REPLY
2 replies
kitty2 | @kitty2 | Mar 24 5:55pm
In reply to @goldenbo "I'm so sorry - I live in south Jersey, and my PCP is in north Jersey..." + (show)
@goldenbo

I'm so sorry - I live in south Jersey, and my PCP is in north Jersey - I can't give her up even though we moved 4 years ago!

Thank you so much the alert info.

I reached out Dr. Tam, who does not treat in New Jersey, but said she is willing to join an appointment with me via phone to assist in setting up a treatment plan. I was impressed with that offer. I heard about her on this site and was impressed. I'm now more impressed. She focuses on LC and ME/CFS.

Jump to this post

DR. Tam is wonderful..just spoke with her yesterday. She is kind and concerned for all of us.
Sincerely, Kitty2

REPLY
olive007 | @olive007 | Mar 26 10:55am

Yes, the lymph nodes under my arms too! I think it increases everyday. A different symptom is added. How are you coping?

REPLY
dloos | @dloos | Mar 27 1:33pm

Yes jmac84,
I have those symptoms too, plus very blurry vision and hearing loss with hyperacusis. For the last 24hrs my upper lip has been twitching! Where does it end I wonder?
After two years, I NEVER get better but my list of symptoms grows.

REPLY
shashig | @shashig | Mar 27 7:16pm
In reply to @goldenbo "I'm so sorry - I live in south Jersey, and my PCP is in north Jersey..." + (show)
@goldenbo

I'm so sorry - I live in south Jersey, and my PCP is in north Jersey - I can't give her up even though we moved 4 years ago!

Thank you so much the alert info.

I reached out Dr. Tam, who does not treat in New Jersey, but said she is willing to join an appointment with me via phone to assist in setting up a treatment plan. I was impressed with that offer. I heard about her on this site and was impressed. I'm now more impressed. She focuses on LC and ME/CFS.

Jump to this post

Hi there...so glad I found this Mayo forum! Can you share where the famous Dr. Tam is located? In DC Metro? My ENT is a superstar at Mt. Sinai in NYC but is only in the office two days a week!

REPLY
2 replies
goldenbo | @goldenbo | Mar 27 9:59pm
In reply to @shashig "Hi there...so glad I found this Mayo forum! Can you share where the famous Dr. Tam..." + (show)
@shashig

Hi there...so glad I found this Mayo forum! Can you share where the famous Dr. Tam is located? In DC Metro? My ENT is a superstar at Mt. Sinai in NYC but is only in the office two days a week!

Jump to this post

I believe Dr. Tam is in Minnesota.

I was in the Mt Sinai study for LC and cognitive impairment. Who is your superstar ENT? Do you live in NYC?

REPLY
1 reply
jac8 | @jac8 | Mar 28 6:51am

I have many of the ones you have mentioned. It kind of fools me. Some issues will go away for awhile just to come back. It feels worse when it comes back but I'm not sure if it is worse or just perception. I've never had cancer but it feels like remission and then not.

REPLY
View MoreView Less
Please sign in or register to post a reply.