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@deanna529

Probably people don't want to share that information. LOL
I shouldn't say it did not help....just not enough. I traveled for top doctors at UPENN and consulted with several doctors before I made the decision. Remember this was 2017. HCOM was pretty rare back then. I think it has come to light more recently. I remember even at that hospital a lot of people never heard about it and wanted to hear my heartbeat. If I remember correctly, the numbers were 1 in 500 people had it. It seems to be much more prevalent now.
I was told at one hospital not to let just anyone operate on me....To do my homework, which I did.
The way I see it is I got a few more years than expected. Every case is different. I took a chance and would do it again if I had to. But today new drugs are coming out all the time. So If the surgery can extend your life, go for it. That is after you try new drugs...that were not available to me in 2017. Good luck to everyone.

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Replies to "Probably people don't want to share that information. LOL I shouldn't say it did not help....just..."

Good comment, Deanna. When I was diagnosed with HCM, neither I nor anyone I knew ever heard of it. I think HCOM as a diagnosis is fairly new, as a condition it probably has been around for generations. I, too, was the heartbeat demonstration - glad I could help out. More is learned every day and in some places, young athletes are screened.