Multiple Strange and New symptoms after Covid

Hi..I have had Covid which has turned my life upside down. When I got Covid on December 19, 2021 I wound up getting severe Ulcerative Colitis which I was in a flare for over two years which required doctors visits , Colonoscopies, Medication and a lot of time off from work. The medication Budesonide made things worse, I stopped taking it a year ago. I had many side effects and it made me sicker. I now was diagnosed with POTS/ Orthostatic Hypotension. I fainted in my driveway Sunday and fell face forward and fractured my nose in two places, with my angel watching out for me no other broken bones, this could have been much worse and the doctor at the hospital said I was lucky. I have had many symptoms and problems since Covid, the fatigue is unreal, chest pain, shortness of breath, dizziness, GI and Ulcerative Colitis and many more. You can write me anytime. I would love to hear from you and others regarding this condition we can not control. Sincerely..Kitty2..with prayers for you to return to good health.

Thank you! I too have had it for 3yrs and experience similar symptoms. One of the most frustrating thing for me is the “out of the blue, lightening fast” onset of a headache or dizziness just when I thought I felt enough energy to walk around the block etc. I’m trying to find an interest which engages me so completely that I forget for a moment what I am unable to do now. Still searching. Good luck to you.

Cropdoc, I am curious about why you asked about blood type O+. I also suffer from many symptoms, and it is O+.

How do I find your info on what plants and herbs to take and how long to fast? I've had long covid for 2 years, affected almost all my metabolic systems. Started to feel better but now the GI pain, and brutal acid reflux are back, wakes me up every couple hrs at night with much pain. I'd like to try your protocol, have tried just about everything else offered by medical community both Western and Eastern medicine etc. Thanks so much

Oh yes, a few other nasty habit of this Long Covid, some symptoms will take a bit of a vacation. Don't be fooled, It's like a spring break, or 3 days weekend. They may come back. Or, they leave and another completely different symptoms appear.
Good luck to everyone! Stay positive as you can, Good health to all!!!
SpicyKim

Hello, I have seen this post for a white now and did not want to read this, because I did not want to own it. Thoughts become things. I have been dealing with LC for a year and a half now. At the ER six times and admitted twice. Primarily heart issues, palpitations, chest pain etc. Dizziness confusion, tremors that were internal, nothing anyone else could see, tinnitus, and a few other weird things. In the beginning I was extremely frightened and obsessed with it it completely changed my game, meaning the things I do daily. I'm on tennis team, last year that did not happen, this year it did. My symptoms come and go but thankfully not as bad as some of the people that I read in here there are people who are 35 years old and can no longer work which breaks my heart. I keep thinking it can always be worse when I read on people like that. I have my issues but there's nothing I can't deal with so far I'm still alive. I have been taking probiotics twice a day, Florastor. About two weeks ago I ran out of Florastor, I live in Florida near Sanibel and I'm at a high tourist area where things run out fast. My symptoms started coming back, I ran out once before in the symptoms came back I truly truly believe that the probiotics are helping me because your immune system starts in your gut and that's what the probiotics help. My point is, I decided to go back and read this because I had something bizarre happen the last few days, the right side of my neck that is swelling up and I had severe pain. I went to a emergency clinic last night. They scheduled me for an ultrasound today. But the bizarre thing was when I read the post on crazy things that are happening with long covid, the neck issues were in there. I was quite surprised I never attributed the neck issue to long covid once again. This may not be the case I may have my ultrasound it may be another issue, I pray not. I'm still not going to own it whatever happens happens it's out of my control except for trying to keep myself healthy. I refuse to have my mind continuously think about this like I did the first year it took over my life I was petrified to go anywhere or do anything cuz I thought I was going to drop it anytime. I'm 64 years old I'm not ready to go now, I'm an avid tennis player and try to enjoy life always. Yes long covid throws a wrench in there and I keep moving on. Anybody who's dealing with anything like this, keep positive I look at the people that are way worse off than I am. I realize although this is hard to deal with is always somebody out there way worse off to me. I just wanted to share that if anybody else has these issues they're not alone. Have a blessed day!

Your story resonates so much with me! I too suffer from cardiac issues; palpitations, skipped heartbeats, fluttering. Multiple trips to the ER, two different cardiologist, two electrophysiologist. Several Zio patches, which showed “rare” heart disturbances, nothing “life threatening” thank God. Horrible gastrointestinal issues, had an upper endoscopy and a colonoscopy, it showed really nothing, just mild irritation in the stomach. So many doctors, tests…nothing! No help, no hope.
But what you said about in the beginning you were petrified and obsessive over what was happening, didn’t want to go or do anything of fear of just dropping. I have been feeling the same way, fearful, obsessive and trying so hard to move forward and live. I try and tell myself “look just go live, whatever is going to happen is going to happen” “just go LIVE”!!! But I tell you that fear has consumed me, it’s been over a year (had COVID Aug, 2022, LC symptoms didn’t really appear until around December 2022, weird)
I pray soo hard I can be in a space mentally and emotionally where you are, it’s inspiring!
I thank you for sharing your story. I wish you continued strength, happiness and better health.

Great reminder that in spite of all that's mysteriously happening to us all, with not much real medical help yet for a cure, we have to live the best life possible. I've had it for over 2 years now, the first year and a half I was distraught constantly seeking medical care and a solution. I've not given up on the medical side of things, but have accepted that at this point all we can get is treatment for individual symptoms, which at times is necessary to relieve those that are really bad and out of control. I even had full thyroid removal, which so far has fixed my heart arrhythmia, but the GI stuff, fatigue etc endures. I also think emotional symptoms are part of long covid at times, I went through a phase when I couldn't wait in line anywhere. I cried in every drug store, grocery store, doctor office. I can laugh about it now, My mantra has become " At Least I'm Not in a Refugee Camp" and that makes me appreciate things more, even as they are with long covid. Acupuncture helped me, took going to 3 different people to find the right one, meditation calms me a lot, deep breathing exercises, walks, socializing with good people ( avoid stressful ones ) and don't talk about your symptoms all the time hen you're with people, eating healthy, and taking the supplements that really seem to help. But recognize supplements can be an expensive Rabbit Hole too. At some point there will be more research answers to this, but its not yet unfortunately. We are disabled, but its not a death sentence, although I realize sometimes it feels like it, and can be utterly depressing as you long for your former self. As a person with 2 years and counting of this, I advise get on with your life in other areas than medical as best you can, and get your mind off thinking about your symptoms all the time by doing other things, not easy I know, but it helps a lot.

I can’t believe I have more symptoms! I think. I thought I was done with symptoms….diagnosed with Smell/taste disorder, congestion, phlegm in throat, muscle issues, rashes, adrenaline rush episodes, anxiety, tingling, numbness and a couple others. Most have resolved or greatly improved! I am active, tight diet and feel really good. A few things remain.

Lately I had had 2 new things. Just for reference, has anyone else? I had an intermittent pulsating feeling on the side of my neck. Sometimes left, sometimes right. At times painful. I saw my primary and was referred for an ultrasound. I have family history for cardiovascular disease. I realize it could be muscle strain, TMJ or anxiety. Or, LC.

Also, I have seasonal allergies for tree pollen. Right now, it’s severe. I’m getting ready to start Flonaz. Besides the water pouring from my nose, I developed a stinging sensation in the tip inside of my nostrils. Started on right one, then went to include left. There is no swelling, abrasion or redness. Just like a needle stinging sensation when I touch the tip of my nose. My primary took a look. Thought maybe allergies. I’m applying slight amount of antibiotic ointment, which does help. Idk. Now, I’m worried over you know what. Trying to keep anxiety down and just treat as allergy. I have and appointment with my ENT for LC pretty soon. My next dermatologist appointment is a few months away. I don’t even know what category this comes under.

What horrific symptoms that have resulted in more tsuris - Yiddish for “troubles” bc it is the only word that fit for me.
My symptoms are different and continuing since late March 2023 when I got COVID and after one dose was taken off paxlovid bc of reaction.*

My PCP’s practice has NO ONE among multiple docs even following the issues - I use google alerts for long COVID which has lead to this group and a ton of scholarly and other articles. It should be a SOP for all general medicine docs to follow.

The exhaustion that I wasn’t feeling at first was added. It began after the latest CDC-advised 65+ addl vax. I feel fortunate that brain fog hasn’t been an issue or I couldn’t work.

*Paxlovid reaction: my heart raced, I felt as if adrenaline was coursing through me, & until it seemed to get through my system, I couldn’t sleep for a full 24 hours when my body craved rest from feeling awful.