1. < Autoimmune Diseases

Can anyone help?

Posted by cynthiak06 @cynthiak06, Feb 28 5:29pm

I was diagnosed 15 years ago with fibromyalgia, Depression, and anxiety disorder. I recently was diagnosed with an autoimmune disease., a Vitamin D Deficiency and a Vitamin B 12 Deficiency. My doctor sent me to a specialist in Winchester Virginia, he was a new doctor there. He tested my blood , then asked me some questions about my symptoms. He then told me I didn't have lupus, Arthritis, or Sjogren syndrome. He did not check me for any other disorders. I'm frustrated and upset. There are so many autoimmune disease s out there , but yet you are only going to check me for 3 of them , what is wrong with that doctor ? I been having stabbing pains in my legs and arms along with burning pain in them also . The pain sometimes gets so intense that it feels like someone is stabbing me with a fork and is twisting and turning it back and forwards . I don't understand why he only checked for 3 of the diseases and not for the other ones . I'm in pain so much now I miss work because of it . I need answers and I'm tired of the run around 😒.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

cynthiak06 | @cynthiak06 | Mar 19 7:25pm

Thank you for your advice 🙏

REPLY
slkanowitz | @slkanowitz | Mar 22 3:20pm

The pains in your legs and arms could be peripheral neuropathy which is caused by several things, an autoimmune disorder called CIDP being one of them. It is rare, so many Drs know nothing about it. It causes numbness as well as pain and eventually muscle weakness. It took me about 12 years to get diagnosed. A neurologist is the Dr to see to rule this out. A rheumatologist is also appropriate to rule out any other associated AI disorders as they tend to occur in multiples. I think your best chance is with these 2 specialists. Go equipped with a concise list of all your symptoms, whether they seem related or not, leave out the fibromyalgia, anxiety and depression history, and take all your lab results you’ve had. Unfortunately, you may be dismissed if you include those last 3 things. Good luck and keep trying. Someone will hear and help you

REPLY
1 reply
cynthiak06 | @cynthiak06 | Mar 22 4:28pm
In reply to @slkanowitz "The pains in your legs and arms could be peripheral neuropathy which is caused by several..." + (show)
@slkanowitz

The pains in your legs and arms could be peripheral neuropathy which is caused by several things, an autoimmune disorder called CIDP being one of them. It is rare, so many Drs know nothing about it. It causes numbness as well as pain and eventually muscle weakness. It took me about 12 years to get diagnosed. A neurologist is the Dr to see to rule this out. A rheumatologist is also appropriate to rule out any other associated AI disorders as they tend to occur in multiples. I think your best chance is with these 2 specialists. Go equipped with a concise list of all your symptoms, whether they seem related or not, leave out the fibromyalgia, anxiety and depression history, and take all your lab results you’ve had. Unfortunately, you may be dismissed if you include those last 3 things. Good luck and keep trying. Someone will hear and help you

Jump to this post

Thank you so very much for your advice. Very helpful. I will check into this .. 😊

REPLY
View MoreView Less
Please sign in or register to post a reply.