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DiscussionPacemaker recipients: Looking for support from others
Heart Rhythm Conditions | Last Active: 15 hours ago | Replies (497)Comment receiving replies
Replies to "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..."
Colleen for the most part. I feel like my pacemaker is set perfect. Life is Great. It is a forein object so feeling it move. Or shut a door on the car and it just nicks your pacemaker. Ok a couple times it got eacked pretty good. Its scary and it hurts. Another feeling ive noticed. At timrs its cold, real cold to touch. Believe me. You feel that cold inside at timrs. I know so of these are little things. They might help some one out there. There little things maybe just what i need to hear. Plus hopefully this will get people going and putting their thought down.
I'm not sure I feel the tug on my heart muscle more so at the pacemaker insert site occasionally. When my pacemaker was placed my restrictions included not putting my arm up over my head and if I remember correctly I didn't sleep on my left side. I had weight restrictions and wasn't to lift my arm over my head. Those were 6 weeks post insertion. 3 months was no swimming. My biggest adjustment was the medication and they allow me to play with it. I think I am finally at a happy place with that. When I have to "report in" every three months I don't notice anything out of the norm during the reading event. When I have an event it feels like my heart beat is running over each other-don't know how else to describe that. Sometimes it is a short event and there have been times when it was out of sync for days but I had this action going on before the pacemaker and I think once the medication and I got into sync that has been less and less an event until we went through Wyoming recently and then I attributed that to the higher altitude. Hope this is helpful. I am 16 months post insertion.
I stricly followed the same directions. Hands not above head and the rest. I have had awesome results. Each test confirms all leads are still in and working. Im just curious if a person could actually feel a tug from the leads. I think i have. Its not a problem. Im just exploring all areas of this experience. I feel great all the tine and have been so Blessed. Thank You for the response.
The answer to my post about blood work. Blood trst give cardic emzyme levels. Once you have heart trouble and take meds. There is a risk of blood clots and kidney function. Cardiac emzymes tell if your heart is struggling or not. So monitoring this can let you know ahead of time if changes are present. PT. PTT This information was explained to me by a Phisician. That stressed you have to push for it. To keep cost down its often put off.
I'm due to have a face to face meeting with staff in the next few weeks. I'll ask them about the PT, PTT - Prior to the pacemaker I had a CT cardiac mapping done which the EP wasn't expecting anything to show up but he wasn't excited about a possible surprise-nor was I but that indicated that my heart is strong-my EF is in a happy place-Just can't keep a happy rhythm-must be why I'm a poor dancer-just kidding-well actually that is definitely true. I definitely didn't get any indications to routinely monitor PT, PTT labs. I left with knowing I will go through another placement in 12-15 years as the battery will most likely give out before the heart will. The other oddity
was during the stress test-techs are mum all the way through the test-mine flipped him out but I wasn't concerned as I don't know that I have ever had a NSR I have junctional node. I did have ST depressions but that bounded back. After the test I was being hooked up to a holter monitor for a month-that was interesting ride. I was having 6 second pauses and there is no doubt in my mind God intervened twice. So He's not ready for me yet.
My ef is 55. Perfectly normal. I had an 80% blocked artery called the widow maker. The right side and SR are still fine. The left side of my heart was damaged pretty severe. My pacemaker uses my SR with one lead. Another lead stimulates the top of my left side. I was told the upper muscle area is hardly used during normal life. So that part is in good shape and now its used by the pacemaker. The third lead is the difb lead. Just in case. I have no trouble going distance on my treadmill or lifting. I know God is with me always. My Faith has been my life long before getting this battery. I also couldnt dance before the pacemaker. Odd that i can dance so well now. NOT just an attempt to agree with your humor. Its nice to be able to hear how others are doing. I personally keep a good outlook and enjoy life. If you know of anyone needing Prayer or just an uplifting positive perspective. Im glad to help in any way i can. I hear some people get depressed post op.
Is your heart healthy other than junctional node. Also is that something that gets worse. Or do you just deal with un normal SR. Im not at all familiar with this issue.
One of the questions I had during my interview with my EP was depression. I personally didn't have that problem. My biggest issue is fatigue. I was adjusting to retirement life and the pace I had been use to for many years being changed and then the introduction to my PM I haven't figured out the fatigue still. Can't blame it on weight gain that isn't an issue. I am very active but some days I crash and burn in the afternoon.
Yes I have a very strong healthy heart. Honestly I am assuming that the junctional node is the cause of the pacemaker. Years back-many years back I found out by the grace of God that I was not normal-sad day-I always thought I was-I was put on medication they give to asthmatics and I lost 5 pounds in one week-everything on the inside was speeding up like having my foot on the accelerator. In the end the cardiologist said stop the medication I'll be fine and I went with that. The only time I would have a NSR was if I would cough continuously or be on the run literally-well that's not possible so I lived with it. Junctional node means that my rhythm comes from the junction-in the center of the heart- and not at the top of the heart like NORMAL people. I guess it is one of those it is what it is and no matter how it goes I am in a WIN WIN situation. I'm thankful for the days I wake up and get going and when they day comes and I wake up and have a new address I'll be HOME.
With added speed up during excercise. Do you find yourself breathing harder or deeper. You may not get enough oxygen sometimes when you think your breathing was fine. Im just a patien so nothing scientific. Best wishes.