← Return to Pacemaker recipients: Looking for support from others

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Replies to "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..."

I read a little from each of the posts you mentioned. Not quite sure how to tag on with them or vice verse. Several of these posts go back several years (2012). I'm really not sure exactly what I am expecting to learn just thought there must be others who have/had similar reasons for a pacemaker as mine and wondered if the healing process, the internal sensations run the same for everyone, how to know if something is abnormal. When to be concerned if there is a when would I know it.

Thank you.

I had a pacemaker installed two years ago following open-heart surgery for an atrial valve replacement and one bypass. My cardiologist checks it even six months to ensure it is working well and that there have been no heart problems. During my last visit I had him adjust the pacemaker to accelerate the function which increases heart rate with exercise. I felt it was not responding quickly enough when I was on the treadmill. I have had three bad fainting spells. My cardiologist say it was not heart related and he is "stumped" re. the reason. I work to keep myself adequately hydrated.

Good Afternoon! I have a pacemaker question for you recipients. Have any of you ever experienced a problem "rejecting" your unit? My husband received his first pacemaker June 2015 and did ok with it til November 2015. Then developed an infection. They removed it December 2015, did 5 days IV antibiotics while he was in ICU and put a new one in on the other side. The incision healed for about 2 weeks, and then re-opened and has never healed since. No blood work nor cultures show infection at any time since, and they have tested repeatedly. He has consistently been on antibiotics since last November when this all started. We finally got his electrophysiologist to believe/admit he agrees his body is rejecting the unit. We have had allergy testing done and all it ruled out is that he is NOT allergic to the titanium or nickel but they don't have testing capabilities to test for the other components so now his doctor just wants to take the pacemaker out and him go back to doing without one. We don't like that option either as he feels so much better with it. Help!!!!

You might try going to Metronics which had most of the pacemaker market. This is a huge business for them and they have done a lot of research on pacemakers.

Thank you I will try that! 

I also would like to hear what other people have to say about internal feelings. How they feel with having a pacemaker. How if at all the meds effect them. Whats normal or expected and whats not.

Great question, Marke92. Do you have "internal feelings" with your pacemaker? How does it make you feel?

@balubeje This maybe jusy me. Do you ever feel like the lrads from the pacemaker pull on yout heart muscle while in certain resting positions. If i lay on my left side. Sometimes ill dozr off. Upon waking my shoulder is up by my chin. I noticed post op it took a few days of healing before i was flexible and painless in this position. As i got more use to laying on my side. I noticed it seem to hurt my heart and even felt as if it was holding it back a little. I dont think itd at all a problem. Like you i curious what othets feel. I also willing to share.

Yes i do @colleenyoung. During the data link on check ups. As the test is done It hurts and feels like a heart attack.i thought they were shocking me. Id anybody elsr out there sensitive to the leads during the circle over the pacemaker test. I kinda hope some of you do. That it is normal. Because im worried the left side was so damaged. Id why it hurts me.
Plrasr reply.