How to manage SIBO symptoms?

Did Xifaxan end up helping? I am currently on my third round of it. I found my symptoms got worse before getting better. I have IBS-D and nothing has helped my SIBO except Xifaxan. I am going to stay on it indefinitely most likely. Have you found anything else to help your symptoms?

Hi @drpepper
Absoluately! And the paradigm is not hard to explain. Gas from dysbiosis perhaps sibo/imo/sifo/ h2s or maybe from sulfur dysregulation - accumulates in epigastric region with upward rising pressure which impinges on vagus complex. Get the air out or belching it out, or fix gut with remedies and nerve and related issues decrease./

The root issue may indeed have roots in sibo, based on your profile it would be my guess. If remedies work, even temporarily, you have probably cause.

Hi, just reading through old posts. These symptoms are the exact ones I have. Just curious if you ever found a cause with your wife's symptoms?

I had ileocecal valve removed during surgery for adhesions. My SIBO is treated with xaxaflaxen plus flagel an antibiotic

Have you been breath tested for any food intolerances like fructose or lactose? Once you have SIBO your gut microbiome is a mess and nutritionists have told me to try a low FODMAP or low inflammatory diet to let it heal.

My next step, my gastro said is to try Xifaxan. If you are on Medicare how do you afford it? It's horribly expensive.

I WAS BEING TREATED BY AN APRN WHO WAS ABLE TO SECURE FOR ME TWO ROUNDS OF XIFAXAN FROM THE DRUG COMPANY AT NO CHARGE TO ME. YOU SHOULD ASK YOUR DOCTOR OR APRN TO SECURE SIMILIAR ROUNDS FOR YOU. FYI I DID NOT FEEL SIGNIFICANTLY BETTER AFTER MY TWO ROUNDS BUT OTHERS HAVE HAD BETTR RESULTS.

I seem to have symptoms of secondary lactose intolerance for sure. I thought about getting allergy tested because I heard the blood draw for intolerances is not that accurate. I should look into the breath tests. I did it for SIBO last summer and tested positive. Thank you!

I have UnitedHealthcare which is an HSA, and they only approve it every 6 months. Horrible! I’ve heard of people (on here) saying they take it continuously, and unless they’re insanely rich to be able to pay for it out of pocket, I can only assume they are on an insurance that approves it. I’m currently tackling that issue. However, Flagyl is a great alternative to Xifaxan, even though Xifaxan is the best for you. I would also recommend asking your doctor to put you on a round of Diflucan, which is an antifungal. Taking the antibiotic for SIBO and the Diflucan has made me feel nearly back to normal.

I am on a feeding tube into my small intestine and I get sibo infections all the time. I have barrett's esophagus, gastroparesis, gastritis, malabsorption and my esophagus is very tight. I also have chronic pancreatitis. Plus other problems. I have 2 types of neuropathy. My gastroenterologist has to do an egd and EUS with biopsies and a celiac block to my pancreas nerves every 2.5 months for the last 5 years. We have tried so many different things for my SIBO. We are currently trying cipro and Flagyl 10 days of every month. But I don't know that it is helping. I have chronic nausea and vomit bile alot. I take 8mg of Zofran all day long. Not every so many hours. Sometimes I take 4 an hour. Sometimes it helps and sometimes it doesn't. I wish I had better answers for you but I honestly don't think the doctors know what to do. Good luck and you have all my Love and prayers ❤️🙏❤️🙏❤️🙏❤️🙏 if you find something that works please let me know. It is very disabling.