How to manage SIBO symptoms?
My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?
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Go to: canadaprescriptionsplus.com website. Contact them via phone…friendly staff. Your doctor will have to fax your prescription to them. My Rifaximin prescription for 50 tablets was $66.20 including postage. You will have to pay with a money order. Be sure to mail the money order with an international stamp to speed up the process. The whole process will take about 3 weeks, but best price I could find. Good luck, hope u feel better!
I had SIBO for quite some time before changing doctors 3 times to find one who knew how to test for SIBO. I can tell you that I took Xifaxan and like all PPI's once I was off, the symptoms return. They return because most doctors have it wrong - we need acid to digest, not block it. PPI's and other antibiotics treat the symptom. Symptoms return once you go off the PPI or antibiotic. Read through this thread and you will find some suggestions - I started with a prebiotic and a probiotic, eventually going off the prebiotic after testing and then eventually off the probiotic after testing, took Dr. Shade's Bitters #9 ten minutes prior to eating and taking slow deep breaths to get the digestive juices flowing, Low Fodmap can be helpful but you also need to find foods on that list that you can tolerate as it can be a very restrictive diet (example: I love avocados and continued to eat them without any effects), I also went gluten free as gluten is a digestive tract disruptor and upsets the microbiome (you'd be surprised how many gluten free products there are now and they actually taste good - Udi's bread, gluten free pastas, etc., - dairy free and eventually slowly adding in one product at a time to see if I could tolerate it, drink Kefir and eat other fermented foods such as pickles (but only from the refrigerated section to keep it from spoiling, and sugar free (using organic Stevia instead in coffee and tea). It's a process and takes time and consistency to get to feeling better and rid yourself of the SIBO. And then, highly important - don't discontinue eating the right way - gluten free, dairy free except what you can tolerate and sugar free as much as possible (check ingredient labels and look at the percentage of sugar. I shoot for 10% or less. It is quite amazing how much added sugar there is in products. If 10% or less is not to my liking of a product, I will add in some Stevia to help.
Best of you!
Thanks gigi. I am 82 and have had IBS-D for over forty years. I also have a rare condition called CVID. Common variable immunodepression. Also called "Boy in the Bubble Disease" I don't make normal antibodies to viruses and bacteria. I do infusions of IgG blood plasma every week to get other peoples antibodies. IgG is one part of gammaglobulin. I am also low on IgA which has to do with the GI system. For some of us with this disease we have trouble with our GI, and some of us with lungs or sinuses or autoimmune diseases to go alone with it. I have been GF for 13 years and mostly dairy free. I had a SIBO breath test about six years ago and it came up I was making methane gas which usually goes with constipation, not diarrhea so that doesn't seem to apply to me. I also have gastritis, hiatal hernia, and diverticulosis. I even have an app in my car called We Can't Wait, and believe me I've had to use it. I will take some of your suggestions.
Dear Gussie,
You mentioned a hiatal hernia. I have one that cramps all the time and makes me regurgitate even water. I feel a stabbing pain going towards my spine. Most of the time I feel like a have a pit in the pit of my stomach. So trying to explain this to the doctor, ended up in explaining my pain as a knot in the pit of my stomach. Bingo! I was referred to psychiatric care. I suffer from anxiety but I think this knot I feel is not anxiety. Any suggestions?
I’ve seen people on here say they take Xifaxan everyday and have been for years. My GI said he has a patient that takes it everyday and he said I could too but my insurance will not approve it! I’m contemplating switching insurances. It’s an HSA with United Healthcare through my parents. I doubt people are paying out of pocket for it since it’s insanely expensive, but I’m curious to know how people are making it work.
I had the test from MNGI.
Seltzer water and saltine crackers oftentimes help my nausea.
Xifaxan is not a proton pump inhibitor (PPI). It is an antibiotic.
Hi Gussie.
I, like you, have been breath tested twice for methanogenic SIBO. Yest I vacillate between diarrhea, constipation and normal. Also, when I do experience constipation or diarrhea it’s never extreme. for example, if I am constipated, I might miss one two days tops of having a bowel movement and that is in frequent and if it’s diarrhea, it’s never a liquid sorry to be so graphic. It’s just softer than it should be and I might have some urgency, but I’m always able to hold it. So I’m not sure methane dominant is accurate for me either 🤷🏽♀️
Dramamine always helped my nausea. Get non drowsy. I belch quite a bit as well. But I have Exocrin pancreatic InsufficiencyTreated for 3 years of IBS. Much luck. Ginger Ale sips help too.