Internal vibrations: Anyone else experiencing this?

Posted by mbryant1380 @mbryant1380, Dec 16, 2023

Anyone else have what feels like internal vibrations, your shaking on the inside but no one can see it from the outside?
Would also like to hear from people who are experiencing this and have discussed this with Long Covid Program providers. And have they given any insight on the cause.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@celia16

I am curious too. I have something similar. I initially thought it was anxiety, but I had panic attacks in 1999 and it’s not like that. It’s more pervasive. It feels like a high intensity internally. An adrenaline rush is a good description of it. Like high pressure in my body. I’ve read some describe it as vibrations, but I wouldn’t describe mine like that. It’s severe intensity. I have checked my blood pressure during an episode before and it has always been normal! Odd. Blood sugar normal too. I have T1 diabetes. Well controlled.

I’m debating if I should start taking an SSRI and see if that helps. Neurologist prescribed it. I’m not sure what to do next. I also have taste/smell disorder, tingling/numbess in hands and feet. Not neuropathy, according to neurologist.

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I have similar issues. It comes on in the middle of the night preventing sleep. Since your pose have you found anything that helps?

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@ripley

I was diagnosed with fibromyalgia, with pain and other symptoms starting five days after getting Covid. So I think I might also have some long-Covid issues. I have severe insomnia because I wake after about 4 hrs of sleep and feel like my nerves have awakened, like the "adrenaline rush" you mentioned. You said you are in treatment. Are you taking any medications that help relieve this? Like you, I stay home alot and also feel that my life is passing me by. Thanks.

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Hi Ripley,
I have been in this for two years now, and have seen many, many doctors and therapists. The adrenaline symptom is just one thing I experience.

My hearing is wrecked, my vision is cloudy, my bowel has shut down, and I have the “adrenaline rush”.
Most doctors want me on an SSRI which I would be happy to take if I could tolerate. Many people get help from SSRI. For me, because of my ear issue it doesn’t work. SSRI makes tinnitus and hyperacusis so much worse for me.
Klonopin helps me, but it is a controlled substance and I take it sparingly. Many doctors won’t prescribe it anymore after the opioid crisis this country is still fighting.
Yes, my life is passing me by.
Good luck to you.

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@ripley

I have similar symptoms and everything started shortly after I had Covid two years ago. I fall asleep okay (with Trazodone and melatonin) but wake after 4 hrs of sleep and can't go back to sleep. It feels like my nerves are being stimulated, like the shaky feeling you mentioned. Since your post in Dec 2023, have you found anything that helps you? All doctors recommend are the strong sleeping meds that have a sleep waking side effect, which I'm afraid to take.

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I awake after 4 hours too. Thought it was just me. I don’t get that intense feeling anymore though. Still can hardly get back to sleep.

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@ripley

I have similar issues. It comes on in the middle of the night preventing sleep. Since your pose have you found anything that helps?

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I can’t say for certain why those episodes have almost completely subsided, but I’m grateful. I believe they are a part of post covid syndrome. Have they subsided due to the passage of time? The burning in my feet has all but disappeared too. My congestion and phlegm in throat has fluctuated. Some days much better. Taste/smell….not much change and the bitter taste…..still bad. Could it be my tight diet, exercise, vitamins, supplements, improved blood sugar control, regeneration of nerves, virus inside me dying, talk therapy? Idk. But, those episodes were the main reason I was considering Lexapro. Now….idk. I wonder when the sleep thing will subside. Last night I got a full 7.5 hours without waking up! That’s so incredible. Hasn’t happened in a long time.

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For those with internal vibrations, I’ve been humming and it does work and it’s crazy that it does but it’s helping!

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@keepinformed

Hello- yes it’s a year and i am still having inner tremors occasional buzzing in soles of my feet . All diagnostic tests normal …. Had EMG last week and told its normal .., so i said most be long COVID effects md replied back or could be anxiety .. i felt so broken after hearing that… i know my body it’s not anxiety ….not sure at this point what i will do from here
Hang in everyone …. Keep fighting

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I was told an anxiety as well. Try humming every time you feel internal tremors it really helps me and perhaps it can help you.

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@krisb

Autonomic Nervous System Dysfunction or Central Sensitization Syndrome, stuck in fight or flight. I had the Stellate Ganglion Block procedure done. Game changer....it is what started me on my path to getting better. I flew out of state to have it done on my own, no referral needed. Vagus Nerve disruption, also comes to mind. Calm the ANS. Sound bowls or tuning fork vibration therapy is another slower route to fix in my opinion, TENS unit, NAD+/NADH, NAC, LDN also needed.

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Did you go to Colorado Springs? I did Stellate Ganglion Block in CS only once & it did not work. How many times did you do it? Also, I have a TENS unit. Where did you place the he unit on your body? Thx!

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@dloos

Hi Ripley,
I have been in this for two years now, and have seen many, many doctors and therapists. The adrenaline symptom is just one thing I experience.

My hearing is wrecked, my vision is cloudy, my bowel has shut down, and I have the “adrenaline rush”.
Most doctors want me on an SSRI which I would be happy to take if I could tolerate. Many people get help from SSRI. For me, because of my ear issue it doesn’t work. SSRI makes tinnitus and hyperacusis so much worse for me.
Klonopin helps me, but it is a controlled substance and I take it sparingly. Many doctors won’t prescribe it anymore after the opioid crisis this country is still fighting.
Yes, my life is passing me by.
Good luck to you.

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I’m in year two of long Covid. I experienced internal vibrations that sometimes became external tremors as well and went to ER first time thinking it was a seizure. It was not. Since my third infection a month ago, some internal vibrations have returned particularly in my chest and right foot. Palpitations as well. The bowel shut down is particularly disturbing at this point as I become bloated and uncomfortable but have no urge to go. Only a medicated suppository helps me but this is not healthy. I’ve also lost weight since which is more pronounced than the first and second infections. Neurological symptoms, head fullness, rumbling noises, some fatigue persist. Will need to see gastro doc if bowel issues don’t resolve.
Hang in there everyone.
LDN being taken now. Will see how that goes. On it for 6 weeks now and feel it has helped with daily headaches.
Good luck to all. Symptoms may not go away, but you can cope better as time goes on. Unless of course you are not able to function and severely ill. Prayers and hugs.

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I’m in year four of LC. About a year ago, I started to experience internal and sometimes external tremors, particularly in my head, neck, shoulders, arms and hands. These would increase markedly with stress, speaking too long or lack of sleep. My face and shoulders would tic as well, particularly my jaw. I can say that these have greatly improved although not completely gone. I also had palpitations/pounding so profound that I could not sleep without the help of ambien. Those are almost gone, except for rare occasions. These all might get better for you, too!

I also experienced a GI phase almost identical to what you describe that lasted a few months. My digestion shut down, I was bloated with horrible gas and I stopped eating. Then I got bad diarrhea for three weeks straight. That phase has resolved. I take Miralax occasionally but, for the most part) I digest and eliminate normally. It might resolve for you too!

Daily headaches for me as well. Since I’m a lifelong migraine sufferer, I know they will never completely go away, but a LC headache feels different. That comes and goes (right now, it’s gone). I have found that certain medications can trigger an avalanche of them, so I just avoid. Also, this could be a migraine thing, not a LC thing.

Two months ago, I was almost disabled, walking around the house crying and wishing for a quick death. Today, I feel almost normal. I still get tics and tremors, but they are manageable. I don’t know why. Is it the course of the illness? Is it just a remission? No idea. Keep hope!

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@barbarabell

I’m in year four of LC. About a year ago, I started to experience internal and sometimes external tremors, particularly in my head, neck, shoulders, arms and hands. These would increase markedly with stress, speaking too long or lack of sleep. My face and shoulders would tic as well, particularly my jaw. I can say that these have greatly improved although not completely gone. I also had palpitations/pounding so profound that I could not sleep without the help of ambien. Those are almost gone, except for rare occasions. These all might get better for you, too!

I also experienced a GI phase almost identical to what you describe that lasted a few months. My digestion shut down, I was bloated with horrible gas and I stopped eating. Then I got bad diarrhea for three weeks straight. That phase has resolved. I take Miralax occasionally but, for the most part) I digest and eliminate normally. It might resolve for you too!

Daily headaches for me as well. Since I’m a lifelong migraine sufferer, I know they will never completely go away, but a LC headache feels different. That comes and goes (right now, it’s gone). I have found that certain medications can trigger an avalanche of them, so I just avoid. Also, this could be a migraine thing, not a LC thing.

Two months ago, I was almost disabled, walking around the house crying and wishing for a quick death. Today, I feel almost normal. I still get tics and tremors, but they are manageable. I don’t know why. Is it the course of the illness? Is it just a remission? No idea. Keep hope!

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Trying to keep hope alive.

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