I’m in year four of LC. About a year ago, I started to experience internal and sometimes external tremors, particularly in my head, neck, shoulders, arms and hands. These would increase markedly with stress, speaking too long or lack of sleep. My face and shoulders would tic as well, particularly my jaw. I can say that these have greatly improved although not completely gone. I also had palpitations/pounding so profound that I could not sleep without the help of ambien. Those are almost gone, except for rare occasions. These all might get better for you, too!

I also experienced a GI phase almost identical to what you describe that lasted a few months. My digestion shut down, I was bloated with horrible gas and I stopped eating. Then I got bad diarrhea for three weeks straight. That phase has resolved. I take Miralax occasionally but, for the most part) I digest and eliminate normally. It might resolve for you too!

Daily headaches for me as well. Since I’m a lifelong migraine sufferer, I know they will never completely go away, but a LC headache feels different. That comes and goes (right now, it’s gone). I have found that certain medications can trigger an avalanche of them, so I just avoid. Also, this could be a migraine thing, not a LC thing.

Two months ago, I was almost disabled, walking around the house crying and wishing for a quick death. Today, I feel almost normal. I still get tics and tremors, but they are manageable. I don’t know why. Is it the course of the illness? Is it just a remission? No idea. Keep hope!

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