AWESOME!!

practicalpainmanagment.com

Dr. Forest Tennant in California is a Arachnoiditis Specialist and will view your MRI'S for free.

I’m sorry you too live with this terrible disease. I have chased everything possible and spent most of my savings looking for a solution. After many doctors and crooks, they’ve come close to killing me which made me realize I need to be careful who I trusted. Do not go anywhere near Mayo Clinic and will leave it at that.. I finally found a doctor in Manchester, TN (Dr Newton) who implanted a pain stimulator. This is the only thing that will help stop most of the pain because it’s not dumping drugs into your system that won’t help damaged nerves. With a pain stimulator, you control vibrating pulses that stop the pain from going to your brain. You will still have to take lower doses of pain killers but nothing like you were on before. There is also a herbal alpha lipoid acid at 600 mg over the counter taken 3 times a day at 2 each time that is a miracle worker helping with pain. I wish you the best in your pursuit for a happier life. Please ask me any questions you would like.

Pam

I realize this has been posted a long time ago but trying to find out if you found relief?

Hello @caklady -- Thank you for the private message. I wasn't sure if you meant to post it or send it to me. It sounds like you have found something that helps with your pain that doesn't include pain medication? There was someone earlier that went to see a Dr. Tennant and was helped. I had posted a little information about him earlier.

I did a search and found the following article that mentions Dr. Forrest Tennant who talks about a new treatment for arachnoiditis:
New Treatment Gives Hope to Arachnoiditis Patients:
— https://www.painnewsnetwork.org/stories/2016/7/9/new-treatment-gives-hope-to-arachnoiditis-patients

Then I did a further search on Google Scholar (https://scholar.google.com/) using "Dr. Forest Tennant arachnoiditis treatment" and came up with more articles. Here is the link for the search results:
— https://scholar.google.com/scholar?hl=en&as_sdt=0,24&q=Dr.+Forest+Tennant+arachnoiditis+treatment

Please keep asking questions and advocating for yourself. You are not alone.

Hoping you get some relief for your pain soon.

John

I feel this way too! This is ridiculous pain.

Thank you @jamienolson ! What does the mayo clinic do? Does someone know if the pain stimulator works. What are your experiences.
Thank you!

@caklady and @ginpain- Welcome!

@ginpain Here is a link to the American Medical Association’s doctor finder https://apps.ama-assn.org/doctorfinder/home.jsp. You can enter your zip code and find a physician or specialist in your area. or Have you considered traveling to one of our Mayo locations?

@caklady, great information! Thank you for sharing your thoughts and experience. Does your doctor think that your numbers will come down even more? What has your treatment consisted of?

I had a doctor tell me if you don’t get the inflammation down you will never have any relief. I started not absorbing my iron or minerals due to inflammation in my gut. You may be making iron and have no saturation! My AA now has all symptoms of Lupis. I don’t believe it’s Lupus. I believe it from the AA going untreated. I was on pain medicine for years. That was my only treatment. If I am not absorbing my iron...how can I be absorbing my pain medicine? I had enough and now I am on the LDN at night and Plaquenial in am. I told my new doctor I don’t want anymore pain medicine! I want to get rid of my inflammation. My inflammation markers were off the chart. C reactive protein was a 36.7 is suppose to be lest than 1. ESR was 70 suppose to be 20. Pain medicine was not helping my numbers. They were climbing every year. I had enough and went to see a Rheumatologist. Now My numbers have cut in half. Don’t wait too long to get treatment. It can cause organ damage, stroke or hear attack. Inflammation is a serious thing. If you are not getting treated for your inflammation...ask your doctor.

did you ever find a Dr and or relief