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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Mar 31 2:11pm | Replies (325)

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@bfsecurityguy

<p>I am desperate to find a dr who treats arachnoiditis. I live in lake county and no one around here can help me. I have been in pain management for almost 3 years. I want out!!!! I want my life back but can't find anyone who wants to help me..I'm so tired of being in pain, feeling like a failure to my family and feeling alone. Any help much appreciated.</p>

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Replies to "I am desperate to find a dr who treats arachnoiditis. I live in lake county and..."

I would eagerly see him but I can't sit long at all. I live in NJ. Which Mayo? I had a MRI few months ago, I was so surprised that the radiologist never mentioned in "comments" my pain pump, cyst near my spine, left kidney is rotated. Those things have always been mentioned in the past except in this MRI???? I have NEVER been treated for AA, now I believe it's too late? It started 2008, never new.

I don't know where Lake County is but here is my doctor's contact info. She has people fly in from all over the U.S.

Linda Bluestein, MD
WI Integrative Pain Specialists
4203 Schofield Avenue, Suite 2
Weston, WI 54476
Phone: (715) 600-1722
https://www.wisconsinintegrativepainspecialists.org/

I have A.A. curious what is PEMF?

In reply to Bforman, I no longer see or look for Neurosurgeons, spine surgeons. The more is done chances of getting worse. There is a Dr. In Calif. Dr. Forrest Tennant. Interest includes AA, he started a Foundation. Some of us are in touch with him. If you live near the NJ areas I have a very Well know Pain Management/Anesthesiologist. Anesthesiologist is a big plus in care. His name is Doctor S. Datta, Pain Management, Hackensack NJ. His practice also includes CancerCare, MS and more. Easy to find him on the Internet. Also can find him, Dr. S, Datta Naltrexone. non-opiate pain medication. He put me on it starting on a very low liquid dose given in an eye dropper. I just started. I hope I can help at least a little for all of you in pain.

Hello, Happy Aqua Therapy worked for you. For me he pressure walking against the water put too much pressure on my spine. I had PT after my fusion 2016 I was sent to Kessler Institute where Superman Steves Reeves was. They were so good. They are in West Orange and Chatham. NJ. I was there for 3 weeks. Dr. Tennant told me that no more can be done. He emailed information to give to my Pain Management Dr..medications I should be on. He is also an Anesthesiologist, It is depressing being told "nothing more can be done for me" Why was I not told of the 90% of the true meaning of Failed back Syndrome? When the Dr's told me my Diag. They closed the door. If I knew I would not have gone on and on and on trying to find Drs to find out what was wrong me and I was getting worse. No more surgeries, Ablations, nerve blocks and more. The trust I had in their decisions changed my life. I find it disparaging that no one is interested in the in AA and how to make patients aware than, make a decision. I think about that a lot,For me, I can't find any answers? Question, Patients with AA have they seen a change in brain activity. I do't know how to word it. Thank You Joan, my best to you also

I too have many of the same debilitating side effects that were brought on after epidural that was supposed to help relieve pain. I am at my wits and the pain is constant 24/7. Is there any help that can be had? I am certainly willing to do just about anything but I will not do cervical spine surgery that will be more debilitating. Because I am already a quadriplegic and all I have is above the shoulders. Please recommend help Help! Anyone!! Pain in my head, neck, and shoulder, fatigue, vision impairment, memory problems, mood swings, depression, etc...

Thanks for sharing Jim, unfortunately my symptoms are getting increasingly more serious and difficult for me to maintain any kind of normal daily life. My head hurts from sun up to sun down every day I have pain in my neck & shoulder also as well as vision problems, memory loss, concentration problem, mood swings, irritability x10, etc... and I have unfortunately been medicated to the max n the past so much the narcs stopped working, so I quit ALL pain meds, :(now i wis I was a junkie again) the pain is getting to be out of control!! Sometimes has to be done!!