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Oxaliplatin is no walk in the park, advice for CAPOX regimen?
Just had first infusion today.
Felt fine and now hours later everything hurts ( numbness, tingling, muscle aches, muscle spasms upon sneezing in my jaw, muscle spasms across my eyes/temple upon tear production and of course upon water being just slightly cooler than room temp) how did you guys manage?
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I did ice packs and drank ice water during my infusions. It helped with that jaw tightening when drinking. My oncologist also added Emend to my premeds to help with the horrible nausea
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3 ReactionsI sure wish I would have known that 10 years ago after infusions with Oxaliplatin. The nerve damage seems to be from the weakness in the hip, knee buckling, foot drop and now hammertoes on my right side. It's hard to believe that the drugs we have to take to save our lives
can do such damage.
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2 ReactionsWelcome, @jd1010. Your questions about the cold packs are good ones. I'm tagging @roywalton to make sure he sees your questions.
JD, the cooling mitts and socks are worn during chemotherapy infusion. You might find this article helpful:
- Can Cooling Gloves and Socks Relieve Chemotherapy Neuropathy? https://www.healthline.com/health/cancer/can-cooling-gloves-and-socks-relieve-chemotherapy-neuropathy
Here's a related discussion:
- Chemo cold cap, socks and mitts: Share your experiences
https://connect.mayoclinic.org/discussion/chemo-cold-cap/
How is your husband doing?
Thank you for this and for following up.
He has completed 4 rounds of 5FU and honestly he is doing well. His main side effect is the cold sensitivity. He does wear gloves when he has to go into the refrigerator, but I try and take everything out for him beforehand. Hopefully as the weather gets warmer he will feel better. We go for treatment next week and will share this information with the Oncology team.
My husband just finished twelve 5FU infusions and scans are clean! question: his fingers continue to be numb (different from the cold sensitivity because now the are insensitive to pain from cold glass (for instance) and he gets a sudden tingling shock in both feet by the ankles at times... Anyone experience this and/or have any suggestions to ease the numbness or feet tingling? Thanks!
Wow - wish I had known about the cold packs! I lived under an electric blanket for 6 months .... also used electric socks 😀
I did ice packs and drank cold water during my infusions. I never experienced the cold sensitivity that others did, but I was only able to complete two treatments before I became ill
Has anyone tried red light therapy to help with the numbness?
My husband is just beginning round 5 of FolFox & experienced neuropathy. He has had acupuncture sessions that he believes helped alleviate the issues. Hope this helps others too.
I did accupuncture and it helped with the pain from neuropathy but didn't improve the numbness.