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Anyone else dealing with Demodex Mites? What helps?

Skin Health | Last Active: 12 hours ago | Replies (185)

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@nancyjg

I'm sorry you're going through that and the Refresh only lasts a few minutes. The Hylo-Forte is not a prescription and I get it through Amazon (see photo). It's for dry eye and wasn't something my Dr recommended, but I found it by reading lots of reviews for other products and it's been working for me. Ive been desperate and buying everything and today found an unopened box of Refresh that I got before finding the Hylo-Forte, and the other Hylo's that were less lubricating. Maybe I shouldn't be using them, but it's working so far. I've gone through many types of drops and maybe it works well because I'm on Xdemvy. Has your doctor talked about XDEMVY? It's horrifyingly expensive but it's been working for me. My 6-weeks on it is over this Monday, 3/18/24 and I'm seeing the doctor that day and can let you know if she says the Demodex are under control. If I need more I'll see if it's any less expensive now that its been on the market longer. I'm still reeling from the $997 I paid, but hear it'll be $50 or $100 and possibly covered by Medicare next year. But my headache is gone and I can open my eyes in the morning (but still put drops in either immediately or within a few minutes).

I used Paula's Choice 2% Salicylic Acid and put it under my eyes (not around) before I went to bed. The first morning when I woke up I was shocked by how smooth my undereye felt. It's still not perfect but it's made a huge difference. But now I'm so dry after using that mask that I'm worried my skin will never recover. I need my old moisturizers but they fed the Demodex so I'm off those for the time being.

I don't blame you for not watching the animation/video because you've done your research and have seen what those horrible things look like, You already understand. But anyone who's not sure they're real, or how they're living on us, should see it.

Have you talked to your doctor about the erythromycin ointment? You'd need a prescription for it.

I wish you the best and am happy I'm not alone, but sorry so many others are also suffering. I wonder if anyone who's been 'cured' and relieved their nightmare is over has stopped coming to this site and no longer sharing what worked. I'm also on the Facebook Demodex for Humans support group and there are 104 people on it and their stories are just as unnerving, but helpful with what they're doing.

Let's hang in there!

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Replies to "I'm sorry you're going through that and the Refresh only lasts a few minutes. The Hylo-Forte..."

My opthamologist actually said I don't have mites when I mentioned to him a few months ago.... unreal. I have all the symptoms and have been suffering with this and complaining to him for ages about burning, dry eyes. I've used HypoChlor with hypocholorus acid he suggested for few years but obviously it's not enough . Like you or another person said, doctors seem to shy away from this ... the two dermatologists I saw were the same - almost indifferent . Very odd. I couldn't find the video of mites on the website you referred to, only the comical one. Will have to look again .I want to find out as much as I can about their habits. Notes I made -- life cycle is 15-18 days. Come out at night from eyelids to mate and lay eggs. What I want to know is where they lay eggs, where do the larvae stay to hatch. I think the larvae are visible but not sure. Demodex folliculorum are ones who live in eyelashes or small hair follicles and brevis in oil glands so I assume the DB are ones who are on in other parts of body.

Question: how do you keep the erythromycin from getting into your eyes, or does it matter if it does?
Do you know why you needed to use the Xdemvy ... since it's only recently approved by FDA and that pricey?
I hope you don't mind all my questions. I always ask a lot of questions, my family find it annoying.