Has anyone been tested for Cystic Fibrosis since Bronchiectasis diag?

I am 77 yrs old and changed Pulmonary dr as we moved. I am on rifampin, azithromycin and arikayce (was on ethambutol but was taken off because of eye problems). My new dr is worried about one of my regular meds that I have been on for a long time for fear of Pulmonary Fibrosis. We are in the process of stopping it.

I was diagnosed with CF in April at National Jewish without genetic testing because my sweat test was so high. The genetic testing confirmed it and now I'm being seen by the Adult CF clinic at the University of Iowa. I am 66.

I’m going for my sweat test soon I just had no idea. CF could be diagnosed so late in life. has your treatment plan changed since your diagnosis?

I am on Trikafta (not sure if I spelled it right) and it has changed my life! I also still have MAC so I'm still dealing with the big 3.

My dr. Sent me for a sweat test to make sure I didn’t have cystic fibrosis after my first visit, just to be sure.

Yes, I was tested many years ago after they changed the parameters for diagnosing cystic fibrosis. I JUST barely made it outside the their parameters, so still remained diagnosed with Bronchiectasis. Nothing changed with my treatment regimine.

Through Invitae I had genetic testing for CF and many other things. Negative across the board. Admitted, I daydreamed about those pink and blue pills known as Trikafta, which are nothing short of a miracle for many CF sufferers. So glad that group has gotten some relief.
https://www.invitae.com

I was diagnosed with single gene CF ten years ago. Have had lung problems since 18, I'm 82 now on oxygen full time & low energy. Multiple other auto immune diseases. Treat one condition & that causes other problems. Excellent doctors doing their best to help.

@tinaesims, would you mind describing how the Trikafta has improved your symptoms/changed your life?

It cut my coughing way down. I no longer cough all night so I can finally get a good night's rest. I have so much more energy and I actually feel healthy.