Please help!! auto immune illness even w/ normal blood test results?

I’m sorry you have been feeling unwell so long with no answers! I reviewed your photo and lab results. There are several tests that i think should be done in addition. Your TSH is upper limit of normal (< 3) and I would check anti thyroid antibodies to check for Hashimoto’s thyroiditis, an autoimmune condition common in women.
An autoimmune panel that checks for many AI disorders would be helpful. This would include ruling out lupus, mixed connective tissue disease, Sjogrens, and several others. Inflammation markers in the blood (sed rate and CRP) would be helpful in view of the mesenteric adenitis, swollen glands and eye inflammation seen in photo. Skeletal muscle enzymes (CK and aldolase) if you have muscle pain or weakness.
Have you ever had a colonoscopy? That can provide information about the chronic constipation, such as redundant (extra long ) colon or spasm in colon that occurs in irritable bowel syndrome.
The eye inflammation looks like panniculitis, an inflammation of soft tissue (can occur anywhere) but I would also wonder about heliotrope changes associated with dermatomyositis. These are both autoimmune as well. A rheumatologist would be the best physician to check these things but your primary care doctor could as well. You might want to show him/her your post here and the photo.
The prolonged cough with colds and respiratory infections sounds like bronchial spasm, which occurs in people who have a tendency toward asthma or bad allergies. I know this is a lot to digest and you will want to research about these suggestions. The thyroid problem, if present, is easy to treat. I think persistence will pay off and additional blood tests will provide clues. Let us know how this process goes.

PS Since these blood tests were done a year and a half ago, the CBC, chemistry panel and thyroid tests should be repeated when you see the Dr soon. Also take more photos of any rashes you have.

Thank you so much - it actually makes me quite emotional to have someone provide solutions instead of telling me I'm fine. I can't tell you how much I appreciate it.

Hello @wonderwall12345, Sorry to hear that you are struggling to get a diagnosis and find something that helps.
There is an older discussion that you might find helpful.
--- Chronic Illnesses of Millions of Women Left Untreated: https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/.

You mentioned you have an upcoming doctors appointment. As mentioned by @slkanowitz you have posted a lot of your story here and it might be helpful to prioritize your symptoms and questions and plan your conversation with your doctor or care team. I thought you might find this information on the Patient Revolution website helpful:
--- Tools for the Healthcare Visit: https://www.patientrevolution.org/tools

Can you provide an update after your appointment?

I see a need for complete testing for lupus with a rheumatologist. ANA, Anti DNA, Centromere, SSA,SSB.
Pictures of the rash if it recurs. Inflammatory markers
all need repeating. At some point you may have to do a
long trial of gluten free diet.

I suggest you google images of heliotrope rash. You will see several pictures that are similar to your eye rash. A dermatologist should see this rash and a biopsy can be diagnostic along with the auto antibody blood tests done by a rheumatologist. Although this information may be disconcerting, it’s better than the total dismissal you have experienced and a diagnosis will be followed by treatment so you can feel better and stop wondering and worrying about what is wrong. I hope you get good cooperation with this investigation in a timely manner.

A normal (max) TSH range is considered by doctors to be between 0.4 and 5.5. I have hypothyroid symptoms if my TSH numbers are above 2. With a thyroid stimulating hormone level of 3, my metabolism would be (has been) low enough that I had severe constipation, needed a starvation diet to control my weight, and had less energy. My last two doctors didn't believe me when I said I feel a lot better at a TSH of 1. My T3 and T4 numbers are normal even at 3 TSH so doctors tend to dismiss TSH. Irksome. I was finally able to nag my doctor to increase my synthroid. Regarding your abnormal GI results, did they look for microscopic collitis? I also have celiac disease so have your symptoms and more if I get glutened, but fine as long as I avoid the nasty wheat/rye/barley glutens. Consider an elimination diet and/or keeping a food log to see if you are sensitive to any foods. I also have to avoid NSAIDs and most legumes.

Wow, I was about to respond to Wonderwall, because we share a lot of common issues, including difficulty losing weight on another thread). I also have Type I diabetes and Hypothyroidism. I take Levothyroxine and have for years. I have suffered from chronic constipation since June 2022 and skin issues, though not on face. Am scheduled for diagnostic colonoscopy next month. Salads can constipate me. I take daily Metamucil and Miralax. I am scheduled with Rheumatologist in August for Sjogren’s eval. Tested negative for that and Celiac. I have other symptoms that have been attributed to post covid syndrome.

Did you have covid?

I’m searching for my latest thyroid test results. I’ve reviewed them with my primary and endo. Hmmmmm…..

Thanks to everyone for great tips on this thread.

I caught covid last March and subsequent long covid that lasted for 8 months (mostly PEM). I was gluten intolerant for decades before H1N1 triggered celiac 14 years ago. Doctors never tested for celiac even with my symptoms (GI, bloating, skin rashes, inflamed lymph nodes, GERD, and others that went away once I went off gluten). The active ingredient in Metamucil is psyllium husk; it is a lot cheaper (and fewer ingredients) to buy that in bulk and add to drinks.

I would research the autoimmune diet. I did that several years back and cutting out gluten made the biggest difference in my health and better results in my inflammation. It’s an easy thing to try before your doctor appointment and will give your doctor more information to help diagnose possibly.