What is long covid?

Posted by spittendrigh @spittendrigh, Sep 6, 2023

1) an auto-immune respose
2) persistant low-level virus
3) or what?

I heard about a happening soon or now conference in Texas. Austin? I need to track that down and follow.

I've had long covid since March 2020. That's when I first got the virus anyway. I felt almost cured in early May this year. Then the Omicron booster sent me into worse-than-ever relapse, within 72 hours after the shot.

Then, a week ago, I started to get dramatically worse. Something was going on beyond just long covid. I had a covid test, and tested positive for tne virus. I started taking Paxlovid and immediately improved. This is day three of Paxlovid. I am not quite as chipper as I was in early May (right before the Omicron disaster). But close.

My intuition is (not qutte) science. However, the dramatic, almost instantaneous improvement made by Paxlovid makes me suspect "lingering low-level virus" is a more likely Long Covid cause than anything to do with an auto-immune response.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@wbbill

I'm sorry to hear the government is involved in long covid--generally they botch it up and make it either a government job site or a political entity.
Where is the Medical AMA ?/ Absent without leave!
they should give Gov't grants to university's for research ---at least our young aspiring youth would become interested--

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Universities are working on long covid. UNC has a long covid program. Yale does too.
This summary from Yale is quite good.
https://www.yalemedicine.org/news/long-covid-symptoms

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I agree, the doctors and specialists I've seen thus far are at a complete loss and it takes courage to tell them what you've learned about the disease ...My theory is that through my Covid infection the chicken pox/shingles virus has been reactivated. I keep having flare ups approx. since week 5 post Covid - when stressed (such as trying to get back to work or even psychotherapy session). The symptoms are extreme exhaustion and feeling feverish, new swollen lymphnods. My PCP saw yesterday that my throat looks infected similar to a viral infection. She says I must have picked up a new viral infection....I never felt a sore throat - which I now believe is connected to the loss of taste? Doctor says I need to rest, hoping that my body will heal it.
Also I have been having facial pain and a single strange pocklike spot above my forehead. Mentioned all of these to several doctors but noone has put things together.
Has anyone else experienced these symptoms/reaction to Covid and could connect it to chicken pox and more importantly: will this heal? Will the body be able to fight the chicken pox virus or will it keep flaring up as part of LC?

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My theory is that through my Covid infection the chicken pox/shingles virus has been reactivated. I keep having flare ups approx. since week 5 post Covid - when stressed (such as trying to get back to work or even psychotherapy session). The symptoms are extreme exhaustion and feeling feverish, new swollen lymphnods. My PCP saw yesterday that my throat looks infected similar to a viral infection. She says I must have picked up a new viral infection....(I disagree, living isolated for fear of a new infection) I never felt a sore throat - which I now believe is connected to the loss of taste? Doctor says I need to rest, hoping that my body will heal it.
Also I have been having facial pain and a single strange pocklike spot above my forehead. Mentioned all of these to several doctors but noone has put things together.
Has anyone else experienced these symptoms/reaction to Covid and could connect it to past chicken pox infections and more importantly: will this heal (week 11 for me now since Covid)? Will the body be able to fight the chicken pox virus or will it keep flaring up as part of LC?

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@gerdi

I agree, the doctors and specialists I've seen thus far are at a complete loss and it takes courage to tell them what you've learned about the disease ...My theory is that through my Covid infection the chicken pox/shingles virus has been reactivated. I keep having flare ups approx. since week 5 post Covid - when stressed (such as trying to get back to work or even psychotherapy session). The symptoms are extreme exhaustion and feeling feverish, new swollen lymphnods. My PCP saw yesterday that my throat looks infected similar to a viral infection. She says I must have picked up a new viral infection....I never felt a sore throat - which I now believe is connected to the loss of taste? Doctor says I need to rest, hoping that my body will heal it.
Also I have been having facial pain and a single strange pocklike spot above my forehead. Mentioned all of these to several doctors but noone has put things together.
Has anyone else experienced these symptoms/reaction to Covid and could connect it to chicken pox and more importantly: will this heal? Will the body be able to fight the chicken pox virus or will it keep flaring up as part of LC?

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I have had long COVID for 4 yrs now...COVID didn't kill me in 2020 but it is slowly killing me😥 I am now unemployed due to extreme fatigue. I could sleep all night and all day . If I do anything I sweat profusely. My face my neck and under clothes get soaked. And by doing that it makes me even more tired and winded. I am short of breath because I'm not used to moving I have brain fog. My memory is not good and I think my taste goes in and out. Also during sleep I go into deep sleep state sometimes and I have trouble waking up. I actually have hallucinations. This is extremely scary. I can't find a doctor who has answers.....I have had vitamin infusions w no improvement. I desperately need my energy back or I am going to sit here and die......

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