1. < Neuropathy

Neuropathy Pain at Night: What helps?

Posted by Donald @donfeld, Jun 8, 2020

THC or marijuana for me relieves pain from neuropathy. It works every time takes a few minutes and a few puffs of smoke and it comes it down for some crazy reason that makes this drug so popular.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Mar 8 7:56am
In reply to @ginlou65 "Hello, I’m new to this forum and I’m hoping to connect with others that deal with..." + (show)
@ginlou65

Hello, I’m new to this forum and I’m hoping to connect with others that deal with neuropathy pain jolting them awake in the middle of the night. It hurts so bad I’m terrified to move but I know I have to. I have many medical issues which don’t help. I had chemotherapy in 2015 for breast cancer and radiation in 2016. Had to deal with all the side effects of taking chemo drugs, tamoxifen for 5 hrs then letrozole for 3 yrs when I finally told my Onocologist NO MORE! I was tired of the side effects. My neuropathy started around 2016 and I have been fighting with it since then. It has progressed and gotten worse over the years so has my health. In 2020 I was diagnosed with RA so I started meds for that (plaqunil, celebrex and recently Humira injections). In 2023, I had heart failure and had a pacemaker put in. Plus I’m a long term depression and anxiety patient. I am also according to my cardiologist “morbidly obese. My neuropathy had been minimal (pain wise) all those yrs until February 2024. I’ll be sleeping soundly (I’m a back sleeper ), when all of the sudden I’m jolted awake with pin and needle sensations and deep burning pain in my right thigh. It takes me 5-10 minutes to maneuver myself out of bed. Then I walk around to ease the pain, but it lingers for a few hours. I’m on 100mg 3 times a day of pregabilin (lyrica); it is not helping. I manage to get approximately 5-6 hours of sleep due to this. Please I’m interested in anyone else that has this jolting night waking pain. What helps? How do I get myself out of bed easier?
Thank you
ginlou65

Jump to this post

Welcome @ginlou65, I'm sorry to hear you are having to deal with the side effects of chemotherapy. I can tell you that you are not alone and that there are many members with experience that may have some suggestions to try. The Foundation for Peripheral Neuropathy recently had a webinar that you may find helpful:
--- Webinar: Chemo-Induced Peripheral Neuropathy:
https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/
There is also a discussion that you might find helpful:
--- Chemo-induced Peripheral Neuropathy and Breast Cancer:
https://connect.mayoclinic.org/discussion/neuropathy-11/
Have you tried any complementary or alternative treatments to see if they may provide some relief for the pain?

REPLY
1 reply
skip | @skipneuroathy | Mar 8 4:10pm

HA ANYONE HAD SUCESS WITH A PILL FORM OF THC FOR LEG PAINS AT NIGHT?

REPLY
ginlou65 | @ginlou65 | Mar 9 7:04am
In reply to @johnbishop "Welcome @ginlou65, I'm sorry to hear you are having to deal with the side effects of..." + (show)
@johnbishop

Welcome @ginlou65, I'm sorry to hear you are having to deal with the side effects of chemotherapy. I can tell you that you are not alone and that there are many members with experience that may have some suggestions to try. The Foundation for Peripheral Neuropathy recently had a webinar that you may find helpful:
--- Webinar: Chemo-Induced Peripheral Neuropathy:
https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/
There is also a discussion that you might find helpful:
--- Chemo-induced Peripheral Neuropathy and Breast Cancer:
https://connect.mayoclinic.org/discussion/neuropathy-11/
Have you tried any complementary or alternative treatments to see if they may provide some relief for the pain?

Jump to this post

Good morning John.
Thank you for the links, I will definitely look into them. This last pain has been different in that it has lasted me a full 26 hours! Not intense as it was when it first jolted me awake yesterday, but still a burning and tingling and sensitive to the touch? Other than Tylenol 3 with codeine at night; this is all I’ve tried. I see my PCP on Wednesday and I’m going to ask her if using medicinal MJ would help and is it safe with all of my other medications. Now that I’m recovered from my pneumonia, I’ll get more active and hope this will help.
Again, thank you for the links and your reply.

REPLY
davelobb12 | @davelobb12 | Mar 9 1:58pm
In reply to @skipneuroathy "Has anyone successfully tried THC inn other forms than smoking? I have had NP since 2009!..." + (show)
@skipneuroathy

Has anyone successfully tried THC inn other forms than smoking? I have had NP since 2009! I have tried everything mentioned except THC via a pipe. I did not fall prey to the electronic-mechanical snake-oil salesmen and their devices "guaranteed to cure". I am 92 and stopped smoking when I was 36. I have healthy lungs and am apprehensive about inhaling any thing into them. Except for the neuropathy, I am in good health. Many years ago I did try THC in a mild pill form. I only had burning toes then. However, it did not help, then. Thanks for any advice.

Jump to this post

Yes. I use toffee candies or they have tea or vaping. There are other edibles also. It really helps me sleep at night. I even get some cool dreams, JK it really works.

REPLY
dieterreuther | @dieterreuther | Apr 3 9:48am

I found Lidocaine 4% patches helpful at night. The Careland 4% Lidocaine Gel-Patches have been working the best for me from an application and adhesive point of view. I cut one in half and apply one half to each foot. Then I also wear tight socks over the patches. The gel feels slightly cooling.

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Oct 8 8:21am

Just saw an interesting article in my email from the Foundation for Peripheral Neuropathy. Thought it might offer some new things to try for those with neuropathy that's worse at night.

-- Why Is Neuropathy Worse at Night?
https://www.massgeneralbrigham.org/en/about/newsroom/articles/why-your-neuropathy-is-worse-at-night

REPLY
joeh9841 | @joeh9841 | Oct 9 11:03am

I finally got a spinal cord stimulator from NevroHFX for neuropathy ( covered by Medicare) & supplement that with bi-weekly IM injections of ALA 25mg/ml , 1cc one -two times a week . Ala pills were of no help. Learned this from a nurse at a vitamin store in Sarasota, Fl. Most Drs know nothing about this…sad!!

REPLY
View MoreView Less
Please sign in or register to post a reply.