1. < Neuropathy

Peripheral Neuropathy and benign fasciculation syndrome.

Posted by sherryw @sherryw, Aug 5, 2019

My neurologist diagnosed me with small fiber peripheral neuropathy. He states i also have BFS (benign fasciculation syndrome.) My legs have weird sensations/zaps/pops, especially at night or when I am lying down. Do others have this problem?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
Chris Trout, Volunteer Mentor | @artscaping | Mar 6 11:38pm
In reply to @dipperlip1 "My lower legs have a burning sensation in the front and tightness in the calfs. My..." + (show)
@dipperlip1

My lower legs have a burning sensation in the front and tightness in the calfs. My feet are either blue/purple and cold or red and hot. Also my knees feel hat, mostly at might. I was diagnosed by Mayo Clinic in 2006 with Erythromelalgia and Raynaud's and 4 years ago with Neuropathy. It seems to be getting worse. Gabapentin gave me no relief. Right now I am taking 2 X-strong Aspirin at bedtime and use Aspercream with Lidocaine. I am thinking about trying CBD capsules. Has anyone tried it for Neuropathy?

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Good evening @dipperlip1 ..........greetings. Are you 85 years old now? I just turned 82 on Monday. I have read about your chronic symptoms of Erythromelalgia. Are your Neuropathy symptoms recognizable? Were you given a cause for your Neuropathy? Where do the symptoms seem to generate? My SFN *small fiber neuropathy) has been with me for 11 years. I have been using medical cannabis for at least 10 of the 11 years. In the last couple of years, I tapered off pain meds like gabapentin because I felt that my MCI (Mild Cognitive Impairment) became worse e.g. fuzzy brain with that particular med.

You are considering CBD as a pain med for your Neuropathy. Have you ever tried some form of marijuana? My goal is to reduce chronic pain without dealing with any psychotherapy.

To accomplish that goal, I use only Tinctures and Topicals. My dosages have changed over the last 10 years so please remember that you begin with small doses and raise them as your body adjusts to the medical cannabis.
So here we go:
1. Use tinctures or a balm. Capsules go into your digestive system and it take a long time to distribute the medication. A tincture submitted under your tongue with a "dropper" will filter through the membrane and go directly to your brain. Here is my daily schedule that is now controlling my SFN (small fiber neuropathy). In the morning, I have my "get up and get going" dosage of 1:1 (CBD/THC). In the afternoon, I may have another small dosage depending upon what my day is like. By evening or bedtime, I find 2:1(CBD/THC) the perfect combination for sleeping. THC activates the CBD in a process called "entrepreneurship".

For the tingles and numbness, you may find that a topical is very helpful. You can read about options on this website: http://www.papaandbarkley.com. And the balm comes in a 1:3 CBD/THC for acute pain or a 3:1 CBD/THC for chronic pain.

I would like to introduce you to @jenatsky. If he is available to stop by and greet you, I am sure that you will benefit from his medical cannabis experience.

Please don't hesitate to ask questions. And if you tell me where you live, I can research the government regulations in your state and pass them on to you.

May you be safe, protected, and free from inner and outer harm.
Chris

REPLY
dbchip | @dbchip | 4 days ago

I have had Benign Fasciculations all over my body for almost 20 years (normal NCS-EMG). In Sept 2021 I developed foot pain and was diagnosed (by NCS-EMG) with Idiopathic PN in my feet. It seems the fasciculations and foot pain go hand in hand. When I get lots of fasciculations I get an increase in foot pain and when they subside my foot pain is always goes down. When I told my Neurologist about this she did not react at all. Told me that it could be related. Is there anyone out there with the same symptoms? It feels very weird.

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