Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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nwyatt | @nwyatt | Mar 6 5:04pm

In reply to @myrnoll "How is your ALP after switching to Evenity?" + (show)

Still slightly elevated. That may keep my dr from putting me back on Forteo.

jillgirl | @jillgirl | Mar 6 8:11pm

In reply to @hopefullibrarian "Hi jillgirl Within a couple of days of my first set of injections, I got a..." + (show)

Thanks for replying! I took my second infusions today. I was advised to take half of one Valtrex pill to prepare for a second blister outbreak. Before the outbreak I was feeling as if I had a virus, then wham! They think it is related to Sjogren's, an autoimmune condition I have. I can assure you the drug companies had zero persons with Sjorgen's in their testing/control group for Evenity. I reported the incident to the drug company. Wishing you good luck.

windyshores | @windyshores | Mar 6 8:32pm

In reply to @giannam "@windyshores Hi !! Always look forward to reading your posts, though I've not been here for..." + (show)

Hi giannam! I am so so glad to hear that Reclast has been so tolerable. Glad you came back and keep us posted!

I am sending you a PM.

mmcbritef | @mmcbritef | May 13 1:10pm

I have had two doses of eventity so far. I do experience the sometimes overwhelming fatigue and also increased joint pain. I have aso noticed that I feel very anxious as well as brain fog and some memory loss which is not my usual mental state. Makes me think evenity may be the cause but the literature gives little info on this possibilty. Have any of you had such reactions with the evenity treatment?

windyshores | @windyshores | May 13 5:24pm

In reply to @mmcbritef "I have had two doses of eventity so far. I do experience the sometimes overwhelming fatigue..." + (show)

Anxiety yes. Brain fog, memory issues and weird dreams, yes. But they eased up after a few doses. For me, what did not ease up was burning, prickly sensations. I did not have joint pain or fatigue.

ps I had COVID 6 weeks before and still wonder if the memory issues were from that

mmcbritef | @mmcbritef | May 13 6:50pm

In reply to @windyshores "Anxiety yes. Brain fog, memory issues and weird dreams, yes. But they eased up after a..." + (show)

I did not have the memory problems before this. I am thinking to try the next dose yet and hope some of my issues start to resovle as it is hard to function at this point. Thanks I do appreciate any input. I was also very leary about starting the regime because the purpose may seem good but the side effects make me wonder about the chemical's affect on the rest of my body.

gravity3 | @gravity3 | May 14 4:16am

In reply to @mmcbritef "I have had two doses of eventity so far. I do experience the sometimes overwhelming fatigue..." + (show)

I have not. I'm into shots 8.

lauratys | @lauratys | May 14 7:01am

In reply to @mmcbritef "I have had two doses of eventity so far. I do experience the sometimes overwhelming fatigue..." + (show)

Hi, Check out the other threads on Evenity and you will find quite a bit of information. I never experienced the fatigue, brain fog or amxiety issues but did have quite debilitating joint pain which began after the 6-7 months of treatment. Completed 11 mos and couldn't take not being able to move without pain in muscles and joints-hips were the worst but every joint right down to my fingers to one extent or another. Hope all goes well and the information on these threads are very helpful. You know "you" best so don't discount how you are feeling.

hudsonlady | @hudsonlady | May 14 9:20am

Finished a year course of Evenity in February with no side effects (though hard to tell side effects from just 81-year-old aches and pains). Dexa scan + blood work show significant improvement. Now on first shot of Prolix so will see how that goes.

2121 | @leslie2121 | May 14 9:29am

In reply to @mmcbritef "I have had two doses of eventity so far. I do experience the sometimes overwhelming fatigue..." + (show)

Hi:
I will add my experience with Evenity. I had a compression fracture in December, 2021 and started Evenity in 2022. It was great until month 5 and started with fatigue, brain fog and rash on my scalp and ears, cheeks. I also had joint pains.
I stopped after month 8, then did a Reclast infusion November 2022. I had some gains but still osteoporosis in lumbar spine.
I’m going to Osteostrong now and not taking any medicine.
Hoping that helps - no other fractures since.