Replies to I am trying to learn more about pulmonary fibrosis. Ofev made a friend too sick. I…

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Lung Health | Last Active: Mar 29 8:36am | Replies (24)

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@klm2

I am trying to learn more about pulmonary fibrosis. Ofev made a friend too sick.

I have done some googling but haven't found much information on options. Anyone know any other meds or treatments I could research?

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Replies to "I am trying to learn more about pulmonary fibrosis. Ofev made a friend too sick. I..."

vic83 | @vic83 | Mar 6 6:22pm

Pulmonary Fibrosis Organization
https://www.pulmonaryfibrosis.org/get-involved/volunteer/pff-community-registry?gad_source=1&gclid=EAIaIQobChMI6rGUh_HghAMVBUpHAR1lAgdeEAAYASAAEgJT1_D_BwE

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19stine75j | @19stine75j | Mar 6 10:01pm

Reaserch Enbrient

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suzcape | @suzcape | Mar 7 9:04am

Diagnosed with IPF Nov 20.
Rheumatoid Arthritis June2022
Rheumatologist put me on Orencia infusions (18 monthly infusions so far) - fantastic results so far. Heard there may be some IPF benefit from Orencia - more research needed. Bless you and all our battles for answers.

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19stine75j | @19stine75j | Mar 8 2:30am

Try pirfenidon- Enbrient… that’s the other one for lungs my doctor prescribed because Ofeb made me sick too. But so far I’m good on it. Ask your doc about it .. think about it

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