Non arteritic ischemic optic neuropathy

I understand totally. There is training for learning to see around the center that may help you. I am glad you have family with you. Are you getting eye injections to save your vision? I am seeing a neuro eye doctor Wednesday because I have had a headache for 4 yrs/7 mos every day/all day. It is effecting my eyes. Getting MRIs for my neck and brain anurism I have. Hopefully this will be the answer. I totally understand.....hang in there and lean on your family and friends as they have leaned on you.

My opthalmologist has stated there is nothing more we can do for my vision to return. I honestly think he is frustrated that he can't help. It's such a horrific thing to happen. I have taken care of my eyes. I've taken Areds2 vitamins for years and have seen him yearly for diabetic check up for neuropathy. All has been wonderful until that day. I had seen him one month earlier and everything was fine. I will have to check on how to usey perephrial vision since I cannot see out of the center. Do you know where I can find that help? I will be praying for good results on your testing. Hope
you get some answers, and some comfort.

I've been told the same. Nothing can be done. Definitely scary

May I ask where you live? Philadelphia has Wills Eye Hospital. Years ago they gave my Mother special huge glasses to use like binoculars. You must find a good hospital that specialises in eyes. Don't give up. They are inventing all kinds of new things to help us. I believe you did all you could as I have and I don't even have diabetes. Prayers for you!

I love in Iowa. I will be talking to my opthalmologist in about a month. I go back to see how the swelling has done. I am close enough to both Mayo and Uof I Hospital. Will see what he says. Keep in touch.

Also, I go to a low vision doctor who deals in macular degeneration, concussions, etc. Try to find a doctor in your area who deals with this. Keep searching and see whomever your insurance will cover - every doctor for opinions. Don't wait, make appointments with whomever will see you. Appointment take long and are hard to get so, don't give up. Make several at a time. Get my point? Do you get injections in your eyes?

Hello everyone,
I was diagnosed with NAION one week ago at Mass General Emergency Eye Hospital. My right eye is affected with grey clouding that gives me very little vision. I am seeing a specialist on Tuesday and booked another doctor at the end of April for a second opinion.
I am a 61 year old male Brit that has lived in the US since 1988. I am absolutely terrified with this diagnosis especially because there is no cure or treatment. I am a graphic designer so vision loss is my worst nightmare. I just wanted to connect with other people in the same situation and not feel so alone in this. Sending positive energy to you all,

We are here for you. So many new treatments out there.....have faith. Keep getting more opinions and go to the best!!!! Where do you live?

Feb 1 of 2024 I lost central vision in my NAION eye in the middle of the afternoon while shoveling a bit of snow. I'm a 68 year old female who cares for a special needs daughter. And, I totally get the fear. I'm in the process of finding out if the swelling has gone down or if I will need an MRI. That in itself scares me. I'm struggling with anxiety, big time. Sweating at night. Can't focus. But, I keep getting up every morning and thanking God for my good eye. We are the lucky ones (note sarcasm) who have no recourse but to deal with this. Those who come behind us will benefit from our tears and fears. Someday, someone will figure this out. Hang in there and know that you aren't alone.

I live in Boston but my doctors are in NYC,
Thanks for the love,