I am reaching out to those with DISH

I am so sorry for what your sister is going through. It is so hard to be in that much pain and really not have a lot that you can do about it. All she can do is the best she can, and employ all the disciplines that she can. I use pain management injections, massage therapy, and my next step is to try acupuncture. I also need to get back in the pool to do a little aqua therapy. Deep water walking, and a little aqua jogging. So much easier to exercise in the water. Prayers to all my DISHies! Sirius🙏

Just wanted to ask all of you with DISH, do any of you feel like you’re having an exacerbation of your disease on a particular day or few days, then you feel a little better again. We are never going to be “perfect” , but feeling like it’s tolerable or dare I say OK is our goal? Right?

I feel like I am in the middle of an exacerbation currently. Insurance won’t pay for shots in my upper back until November. I have them scheduled already. But I feel like it is more than my back really bothering me right now. I have a heel spur on the bottom of my right foot. That feels like I’m walking on a rock every step. I keep trying to stretch the plantar fascia, but it still hurts. I need to see a podiatrist, as I have not seen one in a while. But it feels like everywhere is more painful right now. I guess I was just wondering if others feel that. That some days they are much worse than other days.

I was recently diagnosed with Dysphasgia caused by DISH by my neurologist, Dr. Singh. I recommend him to anyone out there looking for medical support. He has since performed surgery on a bone spur protruding into my throat. My swollowing is improving as I work on my swollow excersizes given to me by my SLP., throat therepist. If DISH is causing you dysphagia 6 you'll need a team.
1. Neurologist
2. LYARANGOLOGIST
(ENT)
3. Throat therepist known as an SLP.
Good luck and God bless you.

I am sorry that you had your dish affect your throat. I know I have read that this can happen but you’re the first I know to have it happen. But I am so glad that you had a great surgeon and great medical team to get you feeling better.
This is a very difficult disease..
I am plagued by both dish and osteoarthritis. I’m waiting to hear from orthopedic about my shoulders. I’m afraid that I could end up having shoulder replacement because of the severity of the osteoarthritis, and I have bone spurs in both shoulders.

Keep healing and I wish you well!🙏

I do have dysphasia after my ACDF c4-c-7 surgery. I’ve been dealing with this for some time after my surgery. It feels like a pressure in my throat and sometimes hard to swallow.

Was the Dysphasgia caused by the surgery?
Do you have a SLP?
Do you have a laryngologist? These people are essential to your care and recuperation.

I’ve had dysphasia for about 3 years already but it has progressed since my surgery. I will look into this with the doctor. Thank you for the information.

Please get examined by both a Neuro surgeon and larangolgist. The sooner the better. Whoever diagnosed your Dysphasgia will write a script for a throat therepist to work with you on your swallow muscles. God bless.

I will. Thank you and God Bless you too.

Please let me know how you are doing. For some reason God has put you in my prayers. I don't know how our why. But you are there.