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Had lobectomy in 2020 still having radiating severe nerve pain.

Posted by mef @mef, Aug 11, 2023

Had upper right lobectomy in 2020. I’m still having severe radiating nerve pain. Anyone else having this?

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Colleen Young, Connect Director | @colleenyoung | Mar 2 2:13pm
In reply to @jannam "My doctor said he would’ve taken my whole left lung if I didn’t have tumors on..." + (show)
@jannam

My doctor said he would’ve taken my whole left lung if I didn’t have tumors on the right lung. Being aggressive can save lives!!

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Welcome @jannam. I'm glad you're here to tell us your story. I see from your bio in your profile that you had bilateral lung cancer in 2020 and metastasis were found in 2021. Are you taking a treatment break at the moment? How are you doing?

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jannam | @jannam | Mar 2 6:09pm

Yes, my nerve pain is severe also. What are you taking for pain management?

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jannam | @jannam | Mar 2 6:10pm
In reply to @colleenyoung "Welcome @jannam. I'm glad you're here to tell us your story. I see from your bio..." + (show)
@colleenyoung

Welcome @jannam. I'm glad you're here to tell us your story. I see from your bio in your profile that you had bilateral lung cancer in 2020 and metastasis were found in 2021. Are you taking a treatment break at the moment? How are you doing?

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Yes, I have been on a treatment break for a year and a half with no progression!

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christinesallitto | @christinesallitto | 1 day ago

I had it done robotically in 2016, I still have spasms where lung was removed, not by the scars, which is odd I think. When they come, they are super painful! I use to get nerve blocker shots, which hurt a lot, but work great. Need to find a new doctor who does them. I would look into pain management for the shot. I use to go 3 full months with no pain!!

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