← Return to Low platelet count of around 120,000: What should be looked at?
DiscussionLow platelet count of around 120,000: What should be looked at?
Blood Cancers & Disorders | Last Active: Mar 3 11:19am | Replies (5)Comment receiving replies
Replies to "Dear @memesedona Hoe you are doing now? I saw your comment how diagnosed with MDS? From..."
I am stressed. I don’t like the “watch and wait”. I now get blood checked monthly. Use to be every six months, then 3 months. I am eating healthy and taking supplements. 2014 I went to a functional medicine doctor who saw my wbc and platelets were low. They have been low for years prior and other doctors wanted me to have a bone marrow biopsy done. Since I felt fine and the thought of a biopsy scared me I always declined. Anyway i finally said yes. The diagnosis came back MDS. In 2018 my platelets dropped drastically to 7000. I had huge bruises on my arm and legs, blood blisters in my mouth. Pretty scary. I had platelets transfusions which only helped temporarily. Then they tried high doses of steroids which didn’t work. I went to Mayo for a second opinion. Mayo dr thought my low platelets were from ITP, not MDS. I had four rounds of infusions, once a week for a month. That finally worked. Infusion was Rituxan. Now my cbc, rbc, hemoglobin, neutrophils, platelets are in the low range. No treatment at the present, hence watch and wait. So that is why I’m trying to find other avenues to improve my numbers. Oncologists don’t think like that. I asked to have an appointment with a nutritionist and integrative dr. Hope you are okay.